blogging, chronic illness, comics, depression, diabetes, disabled, drugs, fibromyalgia, h.r. giger, illness, medicine, Movies, spinal stenosis

update on the state of my mind

i heard an audioslave song, one of my favorites, on a grunge station and i choked up, got tears in my eyes. i keep wondering what chris cornell was thinking during that time between the show, alone in his hotel room, to hanging himself. what pushed him over the edge? all these years i’ve seen interviews with  him and he always seemed so thoughtful and intelligent. i have depression too (i’m bipolar), so i can imagine those feelings pretty clearly. i understand being able to play a show without anyone knowing that you’re feeling like you just can’t make it anymore. (not that i’ve ever played a rock show in front of thousands, but i have had to put an “i’m normal and happy” face when i had to. he had to a lot.  i know you can hide even the worst feelings.  i feel for him so bad. i wish i could have talked to him in that time between the show and his suicide. i don’t know if i could have helped at all, but it seems like if there had been someone there, who got how he felt, it might have gone differently. although, someone who wants to die enough to actually do it, will do it sometime, no matter what you do. i just wish and wish and wish it hadn’t happened. i try to hear it in his voice, when he sings, and i think i might.

i’ve had a lot of pain these past few days. it’s my back i think. that and my knees. the injections in my knees have worn off. you’re usually supposed to get the injections twice a year. you get them in your knee joint (or in this case knees).  you take them in three set sets, both knees each week for three consecutive weeks.

the last time i got them was a year and a half ago. i was having problems with my legs because of my spinal stenosis. at first they thought it was diabetic (yup, got that too) neuropathy, but then decided my symptoms didn’t fit. i was also seeing many doctors on the way to being diagnosed with fibromyalgia. in the middle of all of this, i got two sets of the arthritis injections (the medicine is called Synvisc) and each time my legs became incredibly painful. i figured it was the shots, since it happened each time i got them. i refused the third set (but it still worked for all that time!).  the pain was insane. the second time i ended up screaming and going to the hospital in an ambulance. the EMT gave me iv fentanyl . the pain was still intense, but it made me stop screaming. at the hospital they gave me a couple of shot of dilaudid and that did the trick. they sent me home and the pain went down a lot, but was still feeling too bad to function. it was like that for several days. i don’t know how i got up the stairs but i didn’t go down for 3 days. the staircase was impossible. sitting down on the toilet made me cry out from having to bend my legs.

so! it’s time for synvisc again and i’m fucking terrified. but the knee pain it too bad to live with forever, or even much longer now. i have to try sometime! eep. gasp. panic.

i’m doing something that might be smart, or it might be stupid as hell. i’m getting the one shot synvisc injection. you get all three sets in one injection. it’s 3x as much medicine as i’ve been getting spread over three weeks. the doctor says things like, there will be a great deal of pressure. and the nurse says, the reason not very many people get the synvisc one is because of the pain.

the medicine is thick and the surgeon puts a hypodermic needle that seems like it’s a foot long into the center of your knee joint. it hurts. a lot. but i could deal with it, i’ve been through a lot of pain over the years, so i was ok. but i’m scared about this one. will it be three times worse? i can’t imagine that. the only anesthetic they use is lidocane on the skin where the needle goes in. it doesn’t do shit and it hurts like hell when she puts it on, burning cold. beyond that, and more importantly, than that is the aftermath. will it be 3x worse? i can’t imagine that either.

i decided have the one time shot so that i wouldn’t have to go through the pain afterwards 3x. fear fear fear.  i have a lot of trouble with mental pain, but physical pain is usually something i feel very brave about. but this time is scary.

my tablet died. i finished orange is the new black and it was sooooooo super good. i can’t wait for the upcoming season. my new show is breaking bad. i missed it when it was so popular and i hear so many people say they loved it, i have to watch it. i want to watch better call saul, too, so i thought i’d better watch breaking bad first. i’m reading a superman comic called “secret identity.” it’s a little different than a superman comic we’re all familiar with. it starts with a kid whose parents’ last name was kent. they thought it would be a laugh riot to name him clark.  he’s the laughing stock of the town. but things change. i’ve only read the first couple of issues within the trade paperback. but already he’s developing superpowers that he keeps as a closely guarded secret, hence the title.

i saw Aliens: Covenant yesterday. a lot of the movies at my favorite theater play before noon. all of the movies before noon are half price! so i saw it at 11:30am. it wasn’t very  good. but that’s not to say i didn’t enjoy it. there were some jump out of your seat moments,  and some interesting new additions, but a lot of it was the same thing i’ve seen in all the aliens movies. people see pods and get right over them and look in, well surprise! an alien jumps out and plasters itself to their face. that never happens in an aliens movie! there were running down tunnels or hallways that are sealed and the person running gets locked in with the monster.  that’s an old aliens favorite. it was fun to watch, especially if you’re a die hard aliens fan, like me. one of the things that bothers me the most is that there isn’t any Giger art. i know why, he always battled makers of aliens, maybe ridley scott, or who knows else, used his art for almost nothing and i think they even used things of his after he left the job because they were screwing him over. (this might be quite flawed, but i saw a documentary about giger and that’s what i remember.) i know he was very bitter about it. in this film there were a couple of piles of drawings that you see that look or are giger’s work, but there are vast areas of things like columns with nothing on them when i can imagine them covered with carved giger art.

that’s about it for now, but i think that’s more than enough!

bye!

 

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art, bipolar, blogging, chronic illness, comics, depression, Life, texture

My week.

I was very depressed yesterday because of Chris Cornell’s death. I still can’t listen to Soundgarden or Audioslave, I’m afraid it would upset me more than i”‘m willing to go through right now.

My own depression is bad, my pain is difficult and I have something new to be afraid of. It”s a procedure that is going to be very painful.

I’ve been reading comic books like crazy! I found trade paperbacks aka graphic novels, aka comic books that are collections of quite a few single issues collected in one volume used which are half off the price listed on the book. Comic books are really expensive, so it”s a great find. They have a good selection of older Batman books.

I can”t wait for the Wonder Woman movie to come out and The Defenders on Netflix!
I enjoyed seeing whatever that King Arthur movie is called. I enjoyed it because Charlie Hunnam was the star. I have a big crush on him, from watching 7 seasons of Sons of Anarchy. The plot was all over the place, i didn’t relate or sympathize with any one, there was no character development, and even though it was fantasy, it still seemed like it was wildly unbelievable (not in a good way!).

I am trying to ignore what’s going on in my country. I live in a little bubble . Trump is ruining everything. Photos of him make me sick. So I tune it all out. I like to stay up late and close up everything…all the curtains and blinds. paranoid, maybe. Great need for privacy.

My neighbor complained about my dog’s barking. I don’t blame him, it’s a pain in the ass! I have to figure out how to shut the dog up!

I painted yesterday and today. It felt good,

I hope you have a creative weekend!

anxiety, art, bipolar, chronic illness, chronic pain, depression, dog, dorgi, fatigue, fibromyalgia, illness, music, painting, writing

a blown fuse in the stereo was the catalyst…

we have a stereo in the living room that my husband built. it’s beautiful, both in looks and sound. IMG_20151104_161920192

(thank heavens that bloody elliptical machine is gone. we sold it on craigs list.)

i love hanging out in there because the stereo sounds so good. sometimes during the day when everybody else is at work, i crank it and listen to something that gives me the shivers like “black bird fly” and “because” (beatles) or mozart’s requiem or some bad ass soundgarden, whatever. the volume can be frightening because if it goes all the way up (only happened about four times in a decade) it makes me crazy. the only way i can function enough is to grab the cord and unplug it. i have PTSD  from my mother screaming in my face for years, so loud noises just rip me up.

right now there is a tiny fuse blown in the amplifier that my husband can fix. he figured out the problem with all kinds of tools and meters. i love having a man who understands electronics intimately! the problem is it’s a very specialized part, not the kind of thing you can get at Radio Shack (the one near me is finally going out of business). he ordered it from an obscure site that will take 10 days to get the damn thing. i’m used to Amazon Prime, free two day shipping!

so. no music for 10 days, at least not in the downstairs without headphones. breakfast, no music, lunch, no music, dinner, no music. i don’t like head phones that much, they make me feel too warm. i don’t like earbuds cause they hurt my ears (they must be deformed mutant ears) and the in ear kind won’t stay in. it’s those mutant ears….

that means i am driven up stairs. that’s not so bad because we have what we call the red room, which, big surprise, is painted a nice clear red. that’s the office art room. it used to be anyway. when i was feeling much worse than i do now, while they were trying to diagnose me, i couldn’t come upstairs much because it was such an ordeal, so painful. thanks fibromyalgia and your chronic pain!!! my huz moved most of the art stuff downstairs  and i hung out in the living room on the couch and did what art i could. when i felt good/better i could sit at the dining room table and paint. i can make it into my happy place.

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doesn’t that look fun!?

i’m way off topic! but who cares? it’s self expression and i should do whatever i feel like when i’m writing my blog, right?

there is a fab stereo in the red room and an other awesome one in the bed room, the purple room. the huz built both of those, too. building stereos, both the wood working and the electronics, is one of his hobbies. he’s a software engineer by day.

when i’m feeling crappy, which is 90% of the time, i can lay in bed and use my devices (that sounds rude lol), read a comic book, or draw in my sketchbook. inevitably i go to sleep. i think the pain just wears me out. plus fatigue is a biggie in terms of fibromyalgia symptoms. luckily the bed raises up at the top (like a craftmatic adjustable bed, remember those stupid commercials? doh!) so i’m pretty much sitting up and am more likely to stay awake, which is the goal.

i almost always have the puppeh in bed with me. he LOVES being in bed.

sleepy_mackie

my PC is in the red room. i didn’t use it at all for a couple of years. i was downstairs with my devices. the WordPress app is horrible, just awful. it won’t even show notifications, it just sits and spins it’s wheels. that’s a lot of why i didn’t write in this blog for months and months. i couldn’t use the PC which is the only decent way to work on the blog. (i can still read other people’s blogs on the devices, shwew!) the other thing was that i was so overwhelmed and in so much pain and so depressed that the idea of writing anything was repugnant. now that things are a little better, i don’t mind writing, i’ve come to really enjoy it. i i used to write a lot. i still keep a journal.

the blown fuse on the stereo downstairs is helping write my blog!

totally off topic! i’m listening to the eagles harmonize acapella. that would be a good thing for cranking on the living room stereo.

oh, and welcome to my house! tee hee! 🙂

i hope you’re having an outstanding day! i plan to! ❤