it’s been so long! hello blog friends!
i’ve been fighting health problems for a couple of months or more. the pinched nerves are most of my problem. this has been tougher than i expected, one of the more difficult things i’ve dealt with in my life. pain is always with me. i have good days, but those are only good compared to how bad the bad days are.
i’m trying really hard to stop worrying about the future, cause, who knows what my life will be like in a month.
i want to be strong about this. i haven’t tried to be strong about much of anything in a long time. i’m accepting this challenge and i’m not going to give up!
i’ve connected with a lot of great people on twitter. they’ve become my chronic pain support system. find me on twitter,
i had another epidural steroid injection, this time on the right side of L4. that was yesterday. i had an incredibly painful day after that. my left leg, from knee to food felt like it was swollen triple size (it wasn’t, but that’s nerve pain for you!) and in a vice. i had to check in with my husband at one point and to get help to decide if i needed to got to the ER. we decided no. when i woke up this morning i was feeling lots better! that leg pain was gone! most of me still hurts but any relief is a beautiful thing.
i’ve spent these last couple of months on the couch reading comic books, listening to music, smoking medical marijuana, writing in my journal, hanging out with people on twitter…my spoonie friends.
as you can imagine, this is wreaking havoc on my bipolar and diabetes. so much to deal with!
i got 8″ cut off my hair, since it’s summer. it will have all grown back by winter.
i’ve done very little painting or drawing because it hurts to sit up in a chair. sitting on the couch is ok, lying in bed is ok, but standing sucks. i had to get a cane to walk with because my legs hurt so much and felt so weak. it was a really hard decision; i had to get over my own reaction to the stigma of being disabled. i put it off until i couldn’t leave the house anymore, it was necessary. it helps immensely, so i’m over the feeling of having to give in. sometimes i feel like it makes me look dapper! hehe
my dog has been a delightful companion during this time, he always is, but he’s really been taking care of me. luckily he loves the couch anyway, so he’s been curled up next to me most of the time. walking him is impossible. i let him wander outside and sit on my front steps. in the afternoons we play ball. i’m on the stairs, and i throw the ball for him. he loves it and it tires him out so he won’t be a pest (sometimes he’s bloody annoying! lol), and keeps him fit.
i’m on a variety of pain meds and am pretty foggy most of the time. i can’t drive because of that and because of the pain.
it gets really boring, sitting in one place and doing whatever i can still do, which isn’t much. sometimes i just stare at the wall. i bought a fab new heating pad which makes passing the time more enjoyable. my lower back hurts like hell so i almost always have the pad on. i had the yucky usual kind that bunches up and has a nasty cover. this one is 12″x20.” and is flat and soft. lots of nifty features (pain makes you really obsess about the stuff that helps). i put ice packs on my knees and there i sit.
my computer and my tablet died in the space of one week. my husband fixed the computer and i bought a new tablet cause i knew i’d need something to entertain me and electronic gadgets are FUN!
if i continue to feel better, i’ll be writing more. we’ll see about that!
my fur baby!
i’ve been away a bit, partly taking a little time off because of my health and partly having fun on twitter with other chronic pain survivors.
i have an appointment with my doctor tomorrow to discuss the results of the MRI and x-rays. all he’s said so far is that i have spinal stenosis (http://www.spine-health.com/conditions/spinal-stenosis/what-spinal-stenosis) and it’s causing sciatica. his nurse called on friday saying i will being scheduling and epidural for an injection of steroids in my spine. fun fun fun.
the pain is really bad and very restrictive to what i’m able to do. i’ve been spending most of my time either in bed or laying on the couch. i’m trying to take only one or two norco, but it seems like a lot of the time i take 3 or 4 a day. the doc had me up the gabbepentin dose a lot more. i think that might be helping. it surprises me; there are so many different ways pain can feel. it changes a lot from time to time. it changes in severity a lot, too.
yesterday i went to buy a new batman comic book but it was free comic book day (i think it was a nationwide thing) so the shop i got to, which is ALWAYS empty, had a line out the door! i couldn’t believe it! i didn’t even want a free comic book, i mean, it would be nice, but with this pain, standing in line is out of the question. i managed to squeeze inside just to check it out and the line to buy regular comic books, snaked around and around inside (very small store) because all comics were 25% off. i just needed my batman fix, i read volume one and two of the series i’m into and was desperate for the next one! i left empty handed. meh! bright side…i went back today, no line, no free comics, ahhhh just the usual empty store! i bought the comic i wanted and went home a happy woman.
that was this morning and i’ve been napping ever since (well, after i read a little of the book, gotta stretch it out, they’re expensive!). i’m feeling better and am even *hoping* to paint.
check back tomorrow for details of the effing squashed disc in my back.
i was diagnosed with bursitis a few weeks ago for severe pain in my hip and leg. it didn’t get better so i saw another internal medicine doctor. same diagnosis. they told me to go to my orthopedic surgeon. she didn’t think it was bursitis, so she gave me an injection of lidocaine in my hip as a diagnostic procedure. it didn’t help at all, so she ruled out bursitis. my PCP referred me to a specialist…a doctor of Physical Medicine. i hadn’t heard of that specialty. i read up and apparently they’re good at diagnosing problems that other doctor’s can’t figure out.
it’s not bursitis. it’s sciatica. 😦 😦 😦 i have to have x-rays and an MRI to see if there are bone spurs, too. Dr. Lu prescribed gabapenton (for nerve pain) and diclofenac (strong anti-inflammatory). he’s checking with my endocrinologist to see if he can give me prednisone. all of that is supposed to help the pain, and if that’s not good enough, i can take narcotic painkillers. i really really hope she says yes, and i expect she will. i know from experience that steroids make everything feel better.
he said it might take months or years for it to get better and even then it will flare up now and then. he specifically spoke about chronic pain.
how depressing! i had no idea that it was coming from my back! pinched nerve/herniated disc in the spine. turns out all that stretching that my husband has been nagging me to do just makes it worse! lol
i’m so tired. i picked up the meds and took them, so we’ll see if i feel any better.