art, bipolar, blogging, chronic illness, chronic pain, depression, fibromyalgia, health, Life, Movies, watercolors, weightloss

spontaneous blog post

I’m laying on the couch all propped up with pillows with a heating pad behind me. I took an mmj edible and a prescription NSAID.

My back is a bitch. My spine problems are acting up. I can just hear L4 and L5 screaming. Sometimes it’s like needles poking inside or sometimes an intense ache or a feeling of extreme tightness or it can be something that feels like a great deal of pressure.  It occurs to me that I should check out things specifically for lumbar support.

Low back pain is the most common medical ailment. That’s what a doctor told me when I saw him a few years ago, for….low back pain. He told me to take Ibuprofen. If he had paid a little more attention, maybe he would have been able to see that I needed more than to just take Ibuprofen. I’m sure he was right about his statistic, but he never even asked questions about my pain or any specifics. Doctors probably see a few people a day who say they have low back pain. I can see how they have an automatic answer for the problem, but that doesn’t keep me from feeling some measure of bitterness

I got the feeling that he thought all the low back potential patients were drug seekers. I have to admit that I would have been glad if he had given me painkillers but that’s not why I went to see him and I didn’t ask for them.

ANYWAY, lol, I didn’t go to the movies this week because there was nothing to see. I was very disappointed; I love going to the movies, it’s such a treat! Maybe if I have a couple of weeks (there’s nothing good showing this week either) without going, it will keep it a treat. Wow, though–July and August are going to be fab movie months!

Netflix has become a really close friend. I think most chronically ill people would agree. I’ve been having a fibromyagia flare, a spinal stenosis flare, and my newly coined term, a depression flare. So I’ve been watching anything that seems mildly interesting.

I was able to keep creating through everything. That’s a sanity saver. I painted every day! Lately I am using my Japanese watercolors on watercolor paper. For the last two years when I painted with watercolors, which was a lot, I used Yupo, a synthetic paper that isn’t pourous.

I need to start working in my watercolor journal with watercolor pens again. It turned out that I liked the first set of those pens, which I bought spontaneously when I was in the art store for some paint, enough to get another set a couple of weeks ago. I’m going to finish this watercolor journal and get another. I like making these as epic gifts or to sell.

I’m on a plateau in my weightloss journey. I’m mostly 57 pounds (26kg) down but right now I’m going up a pound or two and down a pound or two. I’m eating sparsely to try to getting back to losing weight. Basically I’m maintaining my weight which is enough for me to feel ok, in the short term.

Saying how much I have lost and that there is more to go, is really really hard because saying that shows that I was pretty damn big and I’m not small in the least now. I’ve never said that on the interwebz before.

That’s enough for now.
Happy weekend!

anxiety, bipolar, chronic illness, depression, fibromyalgia, health, illness, mental illness, Movies, tv

TV?

When I was a kid my parents had me write in a journal what I watched on TV and how long I spent watching. I was only allowed 8 hours per week, including Saturday morning cartoons!

I didn’t know what my classmates were talking about when they got excited about shows they watched every night. I was amazed when they talked about watching TV all day on Saturdays.

My parents were both teachers and were left wing idealists. So I was raised differently from my friends. We never had any junk food around, I wasn’t allowed to eat sugar cereal and I had to drink diet soda. All these things don’t seem like that much, but together, especially the way kids latch onto anything they see as different, like me. Not only was I weird because I had very little experience with pop culture, but I really liked the learning part of school too! god forbid a kid cares about what is being taught​!

My whole life, as an adult, and even when I was in university, I didn’t watch much TV and rarely went to the movies. If someone turned on a TV I’d leave the room (I did watch Twin Peaks and Ren and Stimpy and a bit of MTV. That was when they showed music videos and bizarre, wonderful things like Liquid TV)

Even my favorite shows weren’t imporant to me. I could pass a few weeks and not watch anything.

For many years I didn’t even own a tv. When my husband insisted on buying a big tv I had a fit! I made him put it in the computer room. He liked to play console games on it, too. That seemed like a reasonable use of a tv.

My huz and I had many little conflicts about him wanting us to watch things together and I didn’t. I didn’t want him to watch anything at, but I was very insecure and had to be in the same room as my husband. Poor guy! I followed him around crying.

Having a tablet and Netflix made it all change. I could watch things alone, and I didn’t have to compromise on what to watch. Netflix original shows provided excellent content that actually kept my interest.

now I watch a couple of hours a day and I go to the movies at least once a week. Considering how bored I get, being stuck at home with my illnesses keeping me from doing things most people do, watching stuff is a bit of a life saver. It makes time pass more quickly.

I ‘ve had to tell myself that watching TV isn’t morally wrong!

blogging, goodnight, Movies, phone

working title lol

i’ve been sitting here for the longest time trying to figure out what to write about. i see so many blogs that are organized and researched and illustrated; blogs that are 2500 words or more. my posts are almost totally random and off the cuff. maybe that’s why i have so few people viewing them.

i do lots of random rambling, brain dumps, and made up stuff. there’s something about the really “good” blogs, they seem kind of impersonal. that’s the opposite of the way i work. i throw it out there with abandon. i rarely try to write my blog about a specific topic, by itself, and i’ve never researched anything for my blog. that’s not something to be proud of, i guess it really means that i’m not putting much into it. i just blab.

when i started blogging i wanted to write something open and personal, let people have a look inside. i like the informative blogs and the intellectual blogs but mine is like living with me. is it the ultimate twitter? i write about myself and my feelings, occasionally explaining my artwork and post lots of art. i love posting the art, which i do on several sites. it’s awesome getting comments and knowing that people have looked it and maybe even thought about it.

i’m overhauling my budget so that i can start saving money, fairly quickly, to buy a new phone. i desperately need more storage! i have almost a thousand pictures on my phone and i really don’t want to take them off. things are getting a bit slow and there are a few things that are going wrong for no reason. i’m going to get something unlocked. when i got phones with plans it just seemed like the bill every month was a lot more than i wanted to pay. so. savings. i figure i can live bare bones for awhile and buy one unlocked. part of it is that it seems like saving to get will make me appreciate the spiffy new one. any suggestions? it has to be android.

i saw Wonder Woman with my husband. it was a good think i had seen it before, because i had to leave to pee 3x! how annoying is that?? still, it was fab again and i wouldn’t be surprised if i went to see it again.

have lovely days or nights or both!

 

 

 

anxiety, art, bipolar, chronic illness, chronic pain, comics, depression, fatigue, fibromyalgia, illness, medical marijuana, medicine, mental illness, Movies, spinal stenosis, writing

the state of my mind this week 2

i think it’s been longer than a week since i wrote about the state of my mind. as usual, no one mood can last for long. bipolar is a bitch. if there’s a theme, like in this case, it was the procedure, i moaned and groaned , as you who read this blog will know..

i stayed up most of the night before the because i was so anxious. the middle of the night is the worst.

i woke peter up an hour before he had to take me to the doctor for the injections. i thought he should hang out with me because i was so worried. good grief! who wants to hang out with someone in that state! peter took good care of me the all through the aftermath.. he brought me everything i needed, cooked foods i love and often came down from where he was gaming, and later was sleeping, to it visit me on the couch.

for this set of injections i decided to use the newish Synvisk One. the reaction to injections is the kind of pain i’ve been going through. since it is too horrible to go through it 3 weeks (it takes quite a while to recover from one) i was so worried the pain would be the with 6ml, the whole dose from the small shots, at once. would it it be 3 worse? would the recover be 3x as badly. i couldn’t imagine that.

the shots were bad, though not 3x as bad! the needle getting to the joint with the needle was the same, really effing bad. the difference was that there was so much medicine and it was so thick she had to push it slowly into the center of the joint. she got me talking about me losing a lot of weight which is a great way to distract me. i did a lot of deep breathing while i was waiting because there were two giant needles full of something that looked solid.

long story short, all of that went ok. huzzy took me home and i ate a 200mg THC medical marijuana edible. it did exactly what i wanted to happen. i was asleep all day, until the huz woke me up for dinner, but i didn’t eat (unless you call eating another pot snack) and was in and out til bedtime. i slept on the couch for two days because getting upstairs to the bedroom was impossible.and i needed to be able to be near music and tv , art supplies and comic books and medical marijuana thing i could possibly want, down stairs!

i continued with the edibles. the pain was so powerful that i never got remotely high. i took some cannabis oil, a oral dose, and then i smoked a joint. i got through it without screaming or going to the hospital or making my husband want to divorce me! i took more edibles and then some capsules that act like an edible. that’s pretty amazing! the large doses of edibles, etc, kept the pain low enough to avoid the fentenyl and dilaudid i got at the hospital. the last three times scared badly. this time when the pain was at it’s worst i cried out loud and held my husbands hand hard.

i got these shots for years and never had much pain, some, but nothing like
this time. the last 2 times the terrible pain happened again but i had no idea why. later i asked the surgeon and she was very cavalier about it, and said different people had them like i was before the medicine started making me want to die during the recovery period.

before i scheduled these injections, one in each knee, i wanted to find out more, like if i got something nobody else got, or is there a quickfix?
i checked out a couple of arthritis forums. when i looked for “Synvisk side effects” bingo! there were pages of people saying they got my same horrible reactions i did. many of the people who posted said a few days of helll, then no arthris pain for a year.

i think i’m doing pretty well today, because…..!!!!!!

!!!!!!!…….because i got to see Wonder Woman. i’ve been waiting and waiting. it kicked ass! the heroine was fantastic. so were the other actors and actresses. this one was well done enough that it was easy to lose all track of reality. it depends entirely on the director to make this work. they did it right this time. diana is the kind of warrior who cares so much so that ….oops i almost gave something away! better stop there!

i’ve been very into painting with watercolors. i paint a couple times a day and a doodle all the time. i’m wearing gloves to preserve my manicure. vanity!
of a gel medicine that acts as a cushion between the bones where cartilage used to be (it’s gone or part way gone when you have pain).

for this set of injections i decided to use the newish Synvisk One. the reaction to it is too horrible to go through it 3 weeks (it takes quite a while to recover from one) i was so worried the pain would be the with 6ml, the whole dose from the small shots, at once. would it it be 3 worse? would the recover be 3x as badly. i couldn’t imagine that. the shot

the shots were bad, though not 3x as bad! the needle getting to the joint with the needle was the same, really effing bad. the difference was that there was so much medicine and it was so thick she had to push it slowly into the center of the joint. she got me talking about me losing a lot of weight which is a great way to distract me. i did a lot of deep breathing while i was waiting because there were two giant needles full of something that looked solid.

long story short, all of that went ok. huzzy took me home and i ate a 200mg mmj edible. it did exactly what i wanted to happen. i was asleep all day, until the huz woke me up for dinner, but i didn’t eat (unless you call eating another pot snack and was in and out til bedtime. i slept on the couch for two days because getting upstairs to the bedroom was impossible. needed to be able to be near music and tv , art supplies and comic books and medical marijuana thing i could possibly want.

i continued with the edibles. the pain was so powerful that i never got remotely high. i took some cannabis oil, a oral dose, and then i smoked a joint. i got through it without screaming or going to the hospital or making my husband want to divorce me! i took more edibles and then some capsules that act like an edible. that’s pretty amazingz! the large doses of edibles, etc, kept the pain low enough to avoid the fentenyl and dilaudid the hospital. but i really needed it, i was scared.

i got these shots for years and never had much pain, some, but nothing like this, the last 2 times it happened i had no idea why. later i asked the surgeon and she was very cavalier about it, and said different people had them like i was before the medicine started making me want to die during the recovery period. i think i’m doing pretty well today, because…..!!!!!!

!!!!!!!…….because i got to see Wonder Woman. i’ve been waiting and waiting. it kicked ass! the heroine was fantastic. so were the other actors and actresses. this one was well done enough that it was easy to lose all track of reality. that’s one of my personally are movies and tv that are unreal, meant to be unreal, but everything else is realistic. it depends entirely on the director to make this work. they did it right this time. diana is the kind of warrior who cares so much so that ….oops i almost gave something away! better stop there!

blogging, chronic illness, comics, depression, diabetes, disabled, drugs, fibromyalgia, h.r. giger, illness, medicine, Movies, spinal stenosis

update on the state of my mind

i heard an audioslave song, one of my favorites, on a grunge station and i choked up, got tears in my eyes. i keep wondering what chris cornell was thinking during that time between the show, alone in his hotel room, to hanging himself. what pushed him over the edge? all these years i’ve seen interviews with  him and he always seemed so thoughtful and intelligent. i have depression too (i’m bipolar), so i can imagine those feelings pretty clearly. i understand being able to play a show without anyone knowing that you’re feeling like you just can’t make it anymore. (not that i’ve ever played a rock show in front of thousands, but i have had to put an “i’m normal and happy” face when i had to. he had to a lot.  i know you can hide even the worst feelings.  i feel for him so bad. i wish i could have talked to him in that time between the show and his suicide. i don’t know if i could have helped at all, but it seems like if there had been someone there, who got how he felt, it might have gone differently. although, someone who wants to die enough to actually do it, will do it sometime, no matter what you do. i just wish and wish and wish it hadn’t happened. i try to hear it in his voice, when he sings, and i think i might.

i’ve had a lot of pain these past few days. it’s my back i think. that and my knees. the injections in my knees have worn off. you’re usually supposed to get the injections twice a year. you get them in your knee joint (or in this case knees).  you take them in three set sets, both knees each week for three consecutive weeks.

the last time i got them was a year and a half ago. i was having problems with my legs because of my spinal stenosis. at first they thought it was diabetic (yup, got that too) neuropathy, but then decided my symptoms didn’t fit. i was also seeing many doctors on the way to being diagnosed with fibromyalgia. in the middle of all of this, i got two sets of the arthritis injections (the medicine is called Synvisc) and each time my legs became incredibly painful. i figured it was the shots, since it happened each time i got them. i refused the third set (but it still worked for all that time!).  the pain was insane. the second time i ended up screaming and going to the hospital in an ambulance. the EMT gave me iv fentanyl . the pain was still intense, but it made me stop screaming. at the hospital they gave me a couple of shot of dilaudid and that did the trick. they sent me home and the pain went down a lot, but was still feeling too bad to function. it was like that for several days. i don’t know how i got up the stairs but i didn’t go down for 3 days. the staircase was impossible. sitting down on the toilet made me cry out from having to bend my legs.

so! it’s time for synvisc again and i’m fucking terrified. but the knee pain it too bad to live with forever, or even much longer now. i have to try sometime! eep. gasp. panic.

i’m doing something that might be smart, or it might be stupid as hell. i’m getting the one shot synvisc injection. you get all three sets in one injection. it’s 3x as much medicine as i’ve been getting spread over three weeks. the doctor says things like, there will be a great deal of pressure. and the nurse says, the reason not very many people get the synvisc one is because of the pain.

the medicine is thick and the surgeon puts a hypodermic needle that seems like it’s a foot long into the center of your knee joint. it hurts. a lot. but i could deal with it, i’ve been through a lot of pain over the years, so i was ok. but i’m scared about this one. will it be three times worse? i can’t imagine that. the only anesthetic they use is lidocane on the skin where the needle goes in. it doesn’t do shit and it hurts like hell when she puts it on, burning cold. beyond that, and more importantly, than that is the aftermath. will it be 3x worse? i can’t imagine that either.

i decided have the one time shot so that i wouldn’t have to go through the pain afterwards 3x. fear fear fear.  i have a lot of trouble with mental pain, but physical pain is usually something i feel very brave about. but this time is scary.

my tablet died. i finished orange is the new black and it was sooooooo super good. i can’t wait for the upcoming season. my new show is breaking bad. i missed it when it was so popular and i hear so many people say they loved it, i have to watch it. i want to watch better call saul, too, so i thought i’d better watch breaking bad first. i’m reading a superman comic called “secret identity.” it’s a little different than a superman comic we’re all familiar with. it starts with a kid whose parents’ last name was kent. they thought it would be a laugh riot to name him clark.  he’s the laughing stock of the town. but things change. i’ve only read the first couple of issues within the trade paperback. but already he’s developing superpowers that he keeps as a closely guarded secret, hence the title.

i saw Aliens: Covenant yesterday. a lot of the movies at my favorite theater play before noon. all of the movies before noon are half price! so i saw it at 11:30am. it wasn’t very  good. but that’s not to say i didn’t enjoy it. there were some jump out of your seat moments,  and some interesting new additions, but a lot of it was the same thing i’ve seen in all the aliens movies. people see pods and get right over them and look in, well surprise! an alien jumps out and plasters itself to their face. that never happens in an aliens movie! there were running down tunnels or hallways that are sealed and the person running gets locked in with the monster.  that’s an old aliens favorite. it was fun to watch, especially if you’re a die hard aliens fan, like me. one of the things that bothers me the most is that there isn’t any Giger art. i know why, he always battled makers of aliens, maybe ridley scott, or who knows else, used his art for almost nothing and i think they even used things of his after he left the job because they were screwing him over. (this might be quite flawed, but i saw a documentary about giger and that’s what i remember.) i know he was very bitter about it. in this film there were a couple of piles of drawings that you see that look or are giger’s work, but there are vast areas of things like columns with nothing on them when i can imagine them covered with carved giger art.

that’s about it for now, but i think that’s more than enough!

bye!

 

diabetes, Movies

digging up the dead

i’ve been posting old stuff because it’s so different from what i do now. when i started this blog, my intention was to write stream of consciousness semi-fiction entries. i did it for awhile but i had very few followers so they’re sort of unseen. they’ve shown a lot more activity than my usual posts these days.

i thought i might write some more posts in that style. what do you think?

i went to the movies by myself (favorite pastime, of course) last week. i saw Kong Skull Island or some name like that;  it was crap. i’m not surprised or disappointed. i expected a shitty movie, but it was before noon so it was half price and i just wanted to be at the movies and get a giant soda and kick back in the dark. there were some good special effects in a big scene where Kong bashes up something like 10 helicopters. lots of good explosions. good cast, too. Summer Glau, John Goodman, and even Samuel Jackson. still, it was a flop, but not so bad that i left. it just goes to show that you can throw money and stars at the camera and waste everybody’s time and a helluva lot of money.

my psoriasis got bad enough that i went to a dermatologist. she has a long eastern european name that begins with a G so everyone calls her Dr G. sure that makes it easy and everyone in the clinic knows her that way, even the other doctors.  i think that’s really unfair and disrespectful to her background, presumptuous and it takes a short cut that’s easy for Americans to say, regardless of what her name really is. maybe this is something that just gets up my nose because i’m super sensitive to PC things, but i really believe in it. i had an endocrinologist named Dr. Seneveranati and then she left and i had one name Dr. Srinivasan. both of those names are challenging, and the fact that they’re quite similar, at least to me. but i made the effort to learn them and keep them separate. i think a person deserves to be called by their own name, even if it is a challenge for those of us, ie most Americans, to learn to say. but i think it’s our responsibility to do it. this is one of the few countries in the western world that doesn’t teach multiple languages  from a young age in school. i took french in high school for 4 years, but i’m hardly fluent. now with our horrific president they’ll probably try to make sure Americans don’t learn second language, and god forbid, don’t learn spanish! i’m getting angry as i write this!

my messed up diabetic split toe is starting to heal. the crack is widening, but it looks dry and clean . i’ll really be glad when this is all over so i can get a pedicure. lol! it stopped hurting which is great cause i don’t want to be in extra pain and since it’s healing, i probably have to have my leg cut off. lol that’s a horror i’ve always had, that i’d have to have an amputation (sort of common with diabetic people who don’t have foot exams, that have diabetic neuropothy  and don’t realize they get wounds on their feet or legs and can’t feel it. a wound could get infected and if the person doesn’t realize it could get so bad that part of the leg has to be amputated.) before i got diabetes i read about ella fitzgerald having to get both legs removed at the knee. i’ll never forget that.

have a brilliant saturday!

anxiety, chronic illness, dessert, disabled, fibromyalgia, Japanese food, Movies

going alone

lately i’ve been having fun going to the movies alone. in the past i would have never done that. i would have expected it to make me really anxious. i buy a reserved seat on the aisle (i have to be on the aisle…so i can make a quick get away! lol). it’s a long way to the theaters from the front of the movie plex. i launched myself along to the theater. sometimes i went with the boot on, for my Achilles tendinitis and then i could really move. who would have guessed? 🙂

i like going alone because if the movie is bugging me i can wander around and get a refill on my giant soda, or primp and preen in the bathroom. if i really hate it, i can get up and leave! i don’t do that too often, but i have a few times and it’s fab not to worry about what somebody else wants! the seats at the theater (there’s only one i will go to…it’s close, i know my way around there and there is lots of handicapped parking!) best of all are the seats. they’re like nice recliners, more comfy than my furniture at home. the seats go back and a foot rest comes up. there are cup holders for your giant soda.

today i went out to lunch alone. that was fun too. i had red bean mochi for dessert and my husband wasn’t there to look disapprovingly at me. lol i can take as long as i want and i can look at my phone the whole time, if i feel like it. i don’t have to make conversation, which is sometimes awesome, but today i just didn’t feel like talking. i got there just before the lunch rush, so i got a booth all to myself. i had ramen (real japanese ramen, not the abomination in the plastic wrapper.) they make it with five different broths, you choose one. my favorites are shoyu ramen and miso ramen. it comes with a big piece of pork and a runny egg. i ask them not to give me those. ugh. there are still green onions, weird but tasty mushrooms, fresh corn, lots of noodles and broth. the broth is so go i eat most of that before i even start on the noodles, which are usually my main reason for ordering dishes like this. it was expensive, but entirely worth it. i’m a regular there now! the sushi chef plays bob marley allll the time. i’ve never been in there when he wasn’t playing it. i love that!

i always go to coffee on my own because my huz hates starbucks and only drinks the espresso he makes. i’m not so snooty. right after i get up and get dressed (sometimes i wear my pjs, it’s early) i go to 7-11 and get hazelnut coffee. if they don’t have it brewed, or if it’s been sitting in the container too long, they make me a fresh pot when i ask. i’m really, really a regular there.

there are so many bums around  there, men and women. i’m going to go bankrupt with all the money i give them. i probably shouldn’t, i mean, i don’t especially want those people around, even more so when i first  get up, but my heart goes out to them. i was talking this guy and he told me it had been months since he got to sleep laying down. i imagined that and was horrified. he walks with a cane, too, so i really feel his pain.

everybody is looking for bus fare. ha! they should build a bus stop and right next door, the the cigarette and liquor store, with weed dealers outside next to that. lol. they could have a sign…homeless people with a lot of change welcome here. hahahahah

so, try going places alone, you can make your own choices, independently, doing just what you want! it’s freeing and once you get over feeling weird about it, you’ll really like it, but i don’t thing many people would want to go *everywhere* alone. i sure wouldn’t. but it’s fun when your looking for freedom.

chronic illness folks, you can take as much time as you need to with out worrying about someone else wanting to go faster. you can stop and rest, you can decide it’s too much and just go home. having a handicapped placard makes it soooo much easier! i know some of you just can’t go and i’m sorry about that. i hope this post doesn’t make you feel bad!

have an awesome wednesday!!! ❤