anxiety, bipolar, blogging, chronic pain, depression, disabled, fibromyalgia, marijuana, medical marijuana, mental illness, Movies, spinal stenosis

A tin of mini joints! yay mmj!

I went to “my” dispensary, Harborside Health Center, in Oakland, CA this morning and the 45 minute drive from where I live (Fremont) was really easy. Sometimes it’s awful.  I drive up 880N on the east San Francisco Bay area going up to the Bay Bridge to “the City.” The freeway leads to a zillion other places, too.

The drive can be a bitch. I wouldn’t go near it during rush hour! But it can develop big problems at any time. I think all of this is like any other big city and it’s surroundings.

The freeway (what do you call it? Highway? Motorway? Autobahn?) I pretty scary in places there are very narrow lanes, and lots of places that have no shoulder, some epically bad merges, and more trucks than you can shake a stick at! For a long time it terrified me to drive up there. Now I know it inside out. I actually enjoy it. It clears my head. It’s also probably the most exciting place I ever go!

Today I bought a lot of mini joints.

tin of mini joints 2

Big joints or cones or blunts are just too much for me and since it’s medicine, I don’t share it with anyone. nobody wants to light up something you were smoking before and put out. Yuck! I came across these mini joints are perfect for me or anyone wants to smoke a joint by themselves. The cute tin is great for carrying them somewhere else you need to take your medicine. They’re also a really good deal. They’re 1/4g. The tins cost $40 and hold 12 mini joints.

So! Time to talk about movies. Last weekend my huz and I went to see Valerian. The eye candy was gorgeous. It was very creative and the best special effects I’ve seen in a long time. The girl who plays Loreline is Thea from Arrow. That was a surprise. I like her character on Arrow, so I liked her right away. She’s hotter than hot and loves to show it off. I was very surprised that Valerian was male! For some reason I thought he was a girl. Doh!

I’m only talking about surface things because it’s still me and I won’t give you any spoilers.

Atomic Blonde is out now. I adore Charlize Theron and slick action films are hardly deep, but they’re fun to watch. I have a feeling I’ll be going to that alone next week!

This weekend we are celebrating our 23rd wedding anniversary! One of the things we’re going to do to celebrate is to see Dunkirk. It got great reviews and it’s my very favorite subjects! (I have a b.a. in British history.

Tonight, as a beginning of our celebration, my husband brought me a s’mores sundae. It had real toasted marshmallows on top, they were even kind of burnt, as they should be! We’re going to have a special dinner, but I dunno what. We don’t exchange gifts, he has everything he could ever want, I just got a new phone from my dad, I don’t really need anything. We share the money so what’s the point? We do fun stuff instead!

On the upcoming Tuesday I scheduled 3 doctor’s appointments! Is that mind-blowing or what?? Who has that many doctor’s appointments?? I had to postpone one and I’m going to the other two because they are both psychiatric. I’m seeing my therapist and going to group. The third appointment was in the same department, but it was just getting started with a doctor who runs an acupuncture and meditation group. I can’t wait to start that, though!

I will be seeing my psychiatrist sometime next week, too! Can you tell I’m feeling crazier than crazy? I’m trying to keep myself out of the hospital.

On that jolly note I shall say gooodnight, at least for the moment.

 

 

 

 

 

 

 

anxiety, chronic illness, chronic pain, disabled, drugs, health, illness, medical marijuana, surgery

epidural steroid injection

on thursday i am going to have my sixth epidural  steroid injection. the injection helps control the pain from the problems in my back. i have spinal stenosis which is a narrowing of the spinal column which causes some if the discs to get squashed (like my technical term?) and pinch nerves.

i have problems at L4 and L5 as well as the sacroiliac joint. my pain doctor performs the procedure.

they say “procedure” but to me it seems a lot like surgery! i have to fast, stop taking NSAIDS several days before, etc.  i go to the surgery center and change into a hospital gown, a icky  papery shower cap sort of thing to gather up my hair. they give you cool socks with treads on the bottom. i love them. i’ve quite a collection now.

two nurses come in and put you under a blanket from a warmer, oh jeez that feels good. no matter how hot it outside, it’s freezing cold in the surgery center, plus it’s just reassuring to have a warm blanket over you. they put in an iv and ask me a million questions. even though i’ve done this many times, i still feel a little scared each time.

the nurses are so very very nice. when the doctor finishes her previous case she comes in and talks to me and then they roll me into the OR which is incredibly cold. i have to roll over onto the operating table and lay on my tummy. there is a head rest, like they use during massages. they start giving me fentynal and versed–conscious sedation. you are high as a kite, so it’s almost fun. lol

i hate laying there for 45 minutes with basically nothing on, my butt just hanging out, uncovered. joy. luckily the drugs make you not care too much because i find it extremely discomforting to be nude in a room full of people. there are lots of nurses. the doctor wears a lead apron because they use a giant x-ray  machine that is mounted  on the ceiling and tilts around as they need it to. that’s how they know exactly where  to inject the cortisone…pretty important since they’re putting it in my spine. the injections hurt some going in, but after that it’s not too bad.

when they’re done i get back on the gurney, more embarrassment because the hospital gown is totally open and practically flapping around as you move. then everybody gets to see everything!  i’m sure they don’t give a shit, seen it a million times. but i do! once you’re on the gurney they immediately drown you in warm blankets. the feeling is so good, like the drugs, it’s almost worth it just for that. lol

in the recovery room they put ice packs on your back, keep you awhile for making sure your vitals are good and you’re not going to have a bad reaction or flip out or whatever.

omg i have to pee once i get out of the operating room, so that’s a priority! another time i had this surgery, the surgeon was an hour an half late so i feel asleep. i woke up  and they were rolling me into the OR and i had to pee bad, i mean really really bad. but we were practically there so i couldn’t say anything. it was horrible!  i was pretty sure i would wet myself on the table. that’s not so good for a sterile environment. thank goodness the drugs made it so i didn’t feel like i had to pee. when i got out of surgery, i didn’t have to pee badly, go figure!

you don’t stay in the recovery long and your ride comes and takes you home. you have to have someone stay with you for 24 hours. then the back pain kicks in. it’s pretty unfun for a few days. i’ve got quite a bit of various medical marijuana edibles for that time.

after that, you wait. sometimes the injections work and sometimes they don’t. it’s a crap shoot. last one keep my pain low for about 9 months! most of the others did nothing. but i’ll try anything time after and after.  the pain is very motivating.

so now i get to worry about it until 8am on thursday. 😦

i’ll be ok though, i always am. 🙂

anxiety, art, bipolar, chronic illness, chronic pain, comics, depression, fatigue, fibromyalgia, illness, medical marijuana, medicine, mental illness, Movies, spinal stenosis, writing

the state of my mind this week 2

i think it’s been longer than a week since i wrote about the state of my mind. as usual, no one mood can last for long. bipolar is a bitch. if there’s a theme, like in this case, it was the procedure, i moaned and groaned , as you who read this blog will know..

i stayed up most of the night before the because i was so anxious. the middle of the night is the worst.

i woke peter up an hour before he had to take me to the doctor for the injections. i thought he should hang out with me because i was so worried. good grief! who wants to hang out with someone in that state! peter took good care of me the all through the aftermath.. he brought me everything i needed, cooked foods i love and often came down from where he was gaming, and later was sleeping, to it visit me on the couch.

for this set of injections i decided to use the newish Synvisk One. the reaction to injections is the kind of pain i’ve been going through. since it is too horrible to go through it 3 weeks (it takes quite a while to recover from one) i was so worried the pain would be the with 6ml, the whole dose from the small shots, at once. would it it be 3 worse? would the recover be 3x as badly. i couldn’t imagine that.

the shots were bad, though not 3x as bad! the needle getting to the joint with the needle was the same, really effing bad. the difference was that there was so much medicine and it was so thick she had to push it slowly into the center of the joint. she got me talking about me losing a lot of weight which is a great way to distract me. i did a lot of deep breathing while i was waiting because there were two giant needles full of something that looked solid.

long story short, all of that went ok. huzzy took me home and i ate a 200mg THC medical marijuana edible. it did exactly what i wanted to happen. i was asleep all day, until the huz woke me up for dinner, but i didn’t eat (unless you call eating another pot snack) and was in and out til bedtime. i slept on the couch for two days because getting upstairs to the bedroom was impossible.and i needed to be able to be near music and tv , art supplies and comic books and medical marijuana thing i could possibly want, down stairs!

i continued with the edibles. the pain was so powerful that i never got remotely high. i took some cannabis oil, a oral dose, and then i smoked a joint. i got through it without screaming or going to the hospital or making my husband want to divorce me! i took more edibles and then some capsules that act like an edible. that’s pretty amazing! the large doses of edibles, etc, kept the pain low enough to avoid the fentenyl and dilaudid i got at the hospital. the last three times scared badly. this time when the pain was at it’s worst i cried out loud and held my husbands hand hard.

i got these shots for years and never had much pain, some, but nothing like
this time. the last 2 times the terrible pain happened again but i had no idea why. later i asked the surgeon and she was very cavalier about it, and said different people had them like i was before the medicine started making me want to die during the recovery period.

before i scheduled these injections, one in each knee, i wanted to find out more, like if i got something nobody else got, or is there a quickfix?
i checked out a couple of arthritis forums. when i looked for “Synvisk side effects” bingo! there were pages of people saying they got my same horrible reactions i did. many of the people who posted said a few days of helll, then no arthris pain for a year.

i think i’m doing pretty well today, because…..!!!!!!

!!!!!!!…….because i got to see Wonder Woman. i’ve been waiting and waiting. it kicked ass! the heroine was fantastic. so were the other actors and actresses. this one was well done enough that it was easy to lose all track of reality. it depends entirely on the director to make this work. they did it right this time. diana is the kind of warrior who cares so much so that ….oops i almost gave something away! better stop there!

i’ve been very into painting with watercolors. i paint a couple times a day and a doodle all the time. i’m wearing gloves to preserve my manicure. vanity!
of a gel medicine that acts as a cushion between the bones where cartilage used to be (it’s gone or part way gone when you have pain).

for this set of injections i decided to use the newish Synvisk One. the reaction to it is too horrible to go through it 3 weeks (it takes quite a while to recover from one) i was so worried the pain would be the with 6ml, the whole dose from the small shots, at once. would it it be 3 worse? would the recover be 3x as badly. i couldn’t imagine that. the shot

the shots were bad, though not 3x as bad! the needle getting to the joint with the needle was the same, really effing bad. the difference was that there was so much medicine and it was so thick she had to push it slowly into the center of the joint. she got me talking about me losing a lot of weight which is a great way to distract me. i did a lot of deep breathing while i was waiting because there were two giant needles full of something that looked solid.

long story short, all of that went ok. huzzy took me home and i ate a 200mg mmj edible. it did exactly what i wanted to happen. i was asleep all day, until the huz woke me up for dinner, but i didn’t eat (unless you call eating another pot snack and was in and out til bedtime. i slept on the couch for two days because getting upstairs to the bedroom was impossible. needed to be able to be near music and tv , art supplies and comic books and medical marijuana thing i could possibly want.

i continued with the edibles. the pain was so powerful that i never got remotely high. i took some cannabis oil, a oral dose, and then i smoked a joint. i got through it without screaming or going to the hospital or making my husband want to divorce me! i took more edibles and then some capsules that act like an edible. that’s pretty amazingz! the large doses of edibles, etc, kept the pain low enough to avoid the fentenyl and dilaudid the hospital. but i really needed it, i was scared.

i got these shots for years and never had much pain, some, but nothing like this, the last 2 times it happened i had no idea why. later i asked the surgeon and she was very cavalier about it, and said different people had them like i was before the medicine started making me want to die during the recovery period. i think i’m doing pretty well today, because…..!!!!!!

!!!!!!!…….because i got to see Wonder Woman. i’ve been waiting and waiting. it kicked ass! the heroine was fantastic. so were the other actors and actresses. this one was well done enough that it was easy to lose all track of reality. that’s one of my personally are movies and tv that are unreal, meant to be unreal, but everything else is realistic. it depends entirely on the director to make this work. they did it right this time. diana is the kind of warrior who cares so much so that ….oops i almost gave something away! better stop there!

abstract, art, bipolar, depression, drawing, mania, medical marijuana, psychedelic, trippy

My furious toe.

Some shit head from the ASPCA called me to ask for $$$$, I thought they were hitting members up for money. He kept telling me facts. I asked if he knew I was a member ALREADY. no? then STOP trying to convince me to join! Since he kept reading his script as fast as he could. I said stop talking! But he kept going so I hung up. I never talk to people I don’t know unless they’re something like workmen, doctor’s offices, the pharmacy etc. I was totally stoned, so I had a weird chat with the silly man who did care if i was a monkey or a bot, or someone who actually financially supported the cause he didn’t give a damn about.

I was so stoned because my angry toe is furious. The doctor I saw about it, the split in my toe that won’t heal, was worried because it hurts so much and because i’m diabetic. She prescribed antibiotics. she told me to put antibiotic ointment on it and leave it uncovered. Ha! She should try walking around with a painful open wound just hanging out, waiting to get bumped and I dunno, the problem is dry skin, it’s not like I need to work to keep it open and dry! Right now it’s hurting worse than my back is.

STILL manic!

Thank goodness for pot! Extra NSAIDs , ice, and medical mj make it bearable. I feel disconnected from my toe. lol yay!  I’m listening to a radio station playing ’80s goth music. My youth! At that time punk and goth weren’t so far apart, at least here in the U.S. It’s strange to hear this music in this context. It makes me think of drinking beer in rooms full of inscence smoke and groups of angsty teenagers listening to Bauhaus and the Cure, Ministry, Skinny Puppy, Joy Division.

I didn’t  paint or even doodle a line or two today. Not good.

I went grocery shopping! Omg they packed the bags heavy and the store was huge. At least it wasn’t busy. All that walking on the furious toe and the painful everything else made me wonder if it had been a good idea. when I got home I started spending the afternoon and evening with a giant flare.

Ummm…..Something good today? I read a lot of a Daredevil comic. I didn’t like the crappy paper,and it had a drawing style that I wasn’t into at first, but I like the writing and now the art, too. It’s set in the same time and place as the show and the Kingpin is the bad guy, but the story is very very different. It’s more bleak and cruel. I’m about 2\3 of the way through.

I slept well last night! I went to bed at the same time as huz and dog, wore the CPAP mask. I slept until 6am. But being careful like that didn’t make things go better today. That’s a grim thought. I ate badly today. Ugh.  Let’s hope tomorrow is better.

checkered_past__study_for_a_larger_drawing

 

 

 

 

abstract, anxiety, art, batman, bipolar, chronic illness, chronic pain, comics, depression, dog, drawing, drugs, fibromyalgia, insomnia, mania, medical marijuana, mental illness, oakland california

still manic, still manic, still manic

i spent my day feeling too jumped up, a lot like being on meth. yes, i know a lot about being on meth. oh boy, i’ve never said that in public before. so yeah, i wish manic was like being on coke, but unfortunately it’s like being on meth.

i ate a big dinner which i am regretting because i haven’t been eating much so i feel bloated and gross. sometimes being really hungry for a couple of days makes me feel so clean inside. no, i’m not anorexic. my moods just throw me around a lot, and i’ve got that and all the meds i take and the fibromyalgia and spinal stenosis, and a nasty childhood all contribute to making me do, and feel, and act a little strange…a lot strange…  i do things that don’t make sense some of the time. i got hooked on meth because i was so depressed and it made me feel so much better, that i kept using it. untold energy, no appetite, no need for sleep, elevated mood, euphoria. sounds like being manic, too.  ahhh and delusions of grandeur, i hope i don’t get those, but maybe i’m not bill gates.LOL

i went to the comic book store today. alex the comic book guy was there, of course he was there, it’s his shop. hehehe actually, the only day i’m sure he is working in the shop is tuesdays, so i go about every other tuesday. he’s a cutie, deep, and really smart. not to mention he’s an incredible authority on comics! i bought two issues of batman all star, the rebirth reboot. i got an issue of jessica jones, but i really didn’t like the way it looked. bummer. i still don’t have money, so that’s all i got. i went to starbucks and only got an iced tea, but a cake pop was calling my name. but i averted my eyes and asked for no sweetener in my passion tea.

it was a gorgeous spring day, first one we’ve had this year. i actually drove around with the windows down in my car. a rare thing. i like to listen to music in the car, not wind noise. i am 100% out of mmj. i scraped up every bit, i used the kief in the bottom of the grinder. i am DRY. i hope it’s nice tomorrow because i’ll be driving up to Oakland to go to my dispensary. i call it “my dispensary” as though i owned it. it’s just mine cause it’s the one i’ve chosen to give all my business to.

i saw my psychiatrist today and she thought i might be manic partly because over the last couple days it got to be full blown and that when i had little or no marijuana. we adjusted the meds to, not take ritalin (that’s a no brainer), and to take less wellbutrin because it’s activating.

i saw a woman come home and greet her dog, who had been home alone all day, and they were both so happy to see each other. that’s the kind of thing that really makes me feel good.

Ant_Hills_by_merpagigglesnort

 

 

 

 

 

 

 

abstract, anxiety, art, bipolar, black and white, chronic illness, chronic pain, depression, drawing, fibromyalgia, glasses, mania, medical marijuana, mental illness, optometrist, pen and ink

bipolar and fibromyalgia are kicking my ass

i’m feeling glum today. down, blue, bummed, out of sorts.  i want to write and i get up and down from my desk and start to write and delete it.

so this is bipolar. i’m manic; but right this moment i’m feeling depressed. i’ll get back to feeling manic again. i spent all my money on a LOT of stuff, i just bought anything i wanted. ugh. now i’m left with a whole lot of things, a  zillion of them and no money for anything else. typical mania. i’m hardly sleeping. i ate a huge dinner last night when of my husband’s friend came over, she’s Chinese, so she cooked real Chinese food for us. it was wonderful. but other than that, i’m not eating much.

being manic is a lot better than depressed, in my opinion. if mania lasts too long it can lead to big problems. i’ve been manic for about three weeks, it’s very low grade but can flare up or fall back into depression easily.  it’s good for weight loss! mmj helps a lot, kind of evens me out, gently. it lifts my mood and dampens my constant pain. yay cannabis!

my new glasses are coming today! i’m so excited about being able to see at last. for the longest time eye doctors kept telling me that my prescription hadn’t changed, but i knew it had. finally it’s gotten so bad that the doctor was shocked there was such difference. duh! so hopefully these new glasses will be like new eyes! maybe i’ll be able to drive at night again. that would be really nice.

i am so incredibly cold. i’ve have gotten so much colder since i got fibromyalgia. right now i hurt because i’m cold. putting on lots of extra clothes doesn’t really cut it. it’s from the inside out. i want gloves. spring can be as cold as winter here i want to go get coffee, but i can’t get myself to leave the house. 😦 that’s a product of both bipolar and chronic illness. imagine never ever feeling safe, not safe in your body and not safe in the outside world. maybe it’s anxiety, which seems to go along with bipolar or depression, or on it’s own.

maybe it’s agoraphobia, i suffered from that for a few years. it got to the point that i could only be in one room of the house, the computer/art room. i stayed there all the time, except for sleeping, at night i could go to the bedroom. we even ate our meals in there. my husband was so kind and thoughtful. he takes everything in stride. we’ve had hard times, what  marriages don’t? but he’s a good one, no doubt about it!

compartmentalise

anxiety, chronic illness, chronic pain, depression, disabled, dogs, fatigue, fibromyalgia, medical marijuana, Movies, stress relief

taking a hard fall

the huz and i went to Beauty and the Beast. it was all about dresses and dancing. it was visually fantastic, but that’s about all it did for me.

as i was coming in the house i tripped on the first  step into the living room i tripped and feel on my face. the mega huge soda that i refilled when we leaving the theater and went flying all over the room. i hit the floor with my hip and hand. now i have a sore wrist, a really sore hip, and a sticky floor. the floor is wood, which made the fall delightfully hard. grrr! gahhh! hopefully it was no more than some soreness. i fear this might bring on a flare (just like any kind flare up is like other kinds of flare ups, but in this case, the flare is increased pain) of my fibromyalgia symptoms.

i may spend the evening in bed or maybe one of my prescription NSAIDs. they help quite a bit. ice packs and heating pads will feel good and my pjs and of course, Mackie.

remember those adidas sandals i was stoked about?  i left them together and after the cleaners  came, there was only one. i hardly think they stole it. what would they do with it? lol i trust them anyway. i have looked and looked looked for it and can’t find it. sometimes they put things in odd places that i’d never think to look in or take it away with all their bags of stuff. now what, right? i suppose buy them again, but it just makes me want to scream. the huz will look. he’s good at finding things.

i guess i’ll just smoke a lot of medicine. of course that makes me worry about running out because i  think i really am going to. that’s only happened once before.

so the day sucked. the evening hasn’t happened yet, it might get better.