anxiety, bipolar, chronic illness, depression, fibromyalgia, health, illness, mental illness, Movies, tv

TV?

When I was a kid my parents had me write in a journal what I watched on TV and how long I spent watching. I was only allowed 8 hours per week, including Saturday morning cartoons!

I didn’t know what my classmates were talking about when they got excited about shows they watched every night. I was amazed when they talked about watching TV all day on Saturdays.

My parents were both teachers and were left wing idealists. So I was raised differently from my friends. We never had any junk food around, I wasn’t allowed to eat sugar cereal and I had to drink diet soda. All these things don’t seem like that much, but together, especially the way kids latch onto anything they see as different, like me. Not only was I weird because I had very little experience with pop culture, but I really liked the learning part of school too! god forbid a kid cares about what is being taught​!

My whole life, as an adult, and even when I was in university, I didn’t watch much TV and rarely went to the movies. If someone turned on a TV I’d leave the room (I did watch Twin Peaks and Ren and Stimpy and a bit of MTV. That was when they showed music videos and bizarre, wonderful things like Liquid TV)

Even my favorite shows weren’t imporant to me. I could pass a few weeks and not watch anything.

For many years I didn’t even own a tv. When my husband insisted on buying a big tv I had a fit! I made him put it in the computer room. He liked to play console games on it, too. That seemed like a reasonable use of a tv.

My huz and I had many little conflicts about him wanting us to watch things together and I didn’t. I didn’t want him to watch anything at, but I was very insecure and had to be in the same room as my husband. Poor guy! I followed him around crying.

Having a tablet and Netflix made it all change. I could watch things alone, and I didn’t have to compromise on what to watch. Netflix original shows provided excellent content that actually kept my interest.

now I watch a couple of hours a day and I go to the movies at least once a week. Considering how bored I get, being stuck at home with my illnesses keeping me from doing things most people do, watching stuff is a bit of a life saver. It makes time pass more quickly.

I ‘ve had to tell myself that watching TV isn’t morally wrong!

anxiety, chronic illness, chronic pain, disabled, drugs, health, illness, medical marijuana, surgery

epidural steroid injection

on thursday i am going to have my sixth epidural  steroid injection. the injection helps control the pain from the problems in my back. i have spinal stenosis which is a narrowing of the spinal column which causes some if the discs to get squashed (like my technical term?) and pinch nerves.

i have problems at L4 and L5 as well as the sacroiliac joint. my pain doctor performs the procedure.

they say “procedure” but to me it seems a lot like surgery! i have to fast, stop taking NSAIDS several days before, etc.  i go to the surgery center and change into a hospital gown, a icky  papery shower cap sort of thing to gather up my hair. they give you cool socks with treads on the bottom. i love them. i’ve quite a collection now.

two nurses come in and put you under a blanket from a warmer, oh jeez that feels good. no matter how hot it outside, it’s freezing cold in the surgery center, plus it’s just reassuring to have a warm blanket over you. they put in an iv and ask me a million questions. even though i’ve done this many times, i still feel a little scared each time.

the nurses are so very very nice. when the doctor finishes her previous case she comes in and talks to me and then they roll me into the OR which is incredibly cold. i have to roll over onto the operating table and lay on my tummy. there is a head rest, like they use during massages. they start giving me fentynal and versed–conscious sedation. you are high as a kite, so it’s almost fun. lol

i hate laying there for 45 minutes with basically nothing on, my butt just hanging out, uncovered. joy. luckily the drugs make you not care too much because i find it extremely discomforting to be nude in a room full of people. there are lots of nurses. the doctor wears a lead apron because they use a giant x-ray  machine that is mounted  on the ceiling and tilts around as they need it to. that’s how they know exactly where  to inject the cortisone…pretty important since they’re putting it in my spine. the injections hurt some going in, but after that it’s not too bad.

when they’re done i get back on the gurney, more embarrassment because the hospital gown is totally open and practically flapping around as you move. then everybody gets to see everything!  i’m sure they don’t give a shit, seen it a million times. but i do! once you’re on the gurney they immediately drown you in warm blankets. the feeling is so good, like the drugs, it’s almost worth it just for that. lol

in the recovery room they put ice packs on your back, keep you awhile for making sure your vitals are good and you’re not going to have a bad reaction or flip out or whatever.

omg i have to pee once i get out of the operating room, so that’s a priority! another time i had this surgery, the surgeon was an hour an half late so i feel asleep. i woke up  and they were rolling me into the OR and i had to pee bad, i mean really really bad. but we were practically there so i couldn’t say anything. it was horrible!  i was pretty sure i would wet myself on the table. that’s not so good for a sterile environment. thank goodness the drugs made it so i didn’t feel like i had to pee. when i got out of surgery, i didn’t have to pee badly, go figure!

you don’t stay in the recovery long and your ride comes and takes you home. you have to have someone stay with you for 24 hours. then the back pain kicks in. it’s pretty unfun for a few days. i’ve got quite a bit of various medical marijuana edibles for that time.

after that, you wait. sometimes the injections work and sometimes they don’t. it’s a crap shoot. last one keep my pain low for about 9 months! most of the others did nothing. but i’ll try anything time after and after.  the pain is very motivating.

so now i get to worry about it until 8am on thursday. 😦

i’ll be ok though, i always am. 🙂

anxiety, bipolar, chronic illness, depression, fatigue, fibromyalgia, health, illness, insomnia, mania, mental illness, psychiatry, spinal stenosis, stress relief

group (therapy)

i used to go to group, but then something horrible happened there and i stopped going.  the thing that happened…oh wait, i signed a document saying i am not supposed to talk about what anybody says in group. i guess you’ll just have to not know! my psychiatrist has been nagging me to go group for, literally, years.

about a month ago i decided try to do something about getting myself out of the hole i was hiding, and torturing myself while i was there. had been like that…bad anxiety, depression, both manic and depressive episodes (mixed episodes), not sleeping much, eating badly, and on and on  for a very long time.

at that time i started to go to group again. it’s been very helpful at getting myself out of the house. we talk, and and relate with each other and cry. we usually end doing something mindful, like guided mediation, to settle ourselves down from a taxing hour.

i’m able to go to group because it’s totally free form. you can show up or leave while it’s going on. sometimes i just sit and doodle, listening. sometimes it’s two people, sometimes it’s 10.

i need all the help my medical team can give me! i see my pain doctor tomorrow.

have a great evening!

anxiety, art, bipolar, chronic illness, chronic pain, comics, depression, fatigue, fibromyalgia, illness, medical marijuana, medicine, mental illness, Movies, spinal stenosis, writing

the state of my mind this week 2

i think it’s been longer than a week since i wrote about the state of my mind. as usual, no one mood can last for long. bipolar is a bitch. if there’s a theme, like in this case, it was the procedure, i moaned and groaned , as you who read this blog will know..

i stayed up most of the night before the because i was so anxious. the middle of the night is the worst.

i woke peter up an hour before he had to take me to the doctor for the injections. i thought he should hang out with me because i was so worried. good grief! who wants to hang out with someone in that state! peter took good care of me the all through the aftermath.. he brought me everything i needed, cooked foods i love and often came down from where he was gaming, and later was sleeping, to it visit me on the couch.

for this set of injections i decided to use the newish Synvisk One. the reaction to injections is the kind of pain i’ve been going through. since it is too horrible to go through it 3 weeks (it takes quite a while to recover from one) i was so worried the pain would be the with 6ml, the whole dose from the small shots, at once. would it it be 3 worse? would the recover be 3x as badly. i couldn’t imagine that.

the shots were bad, though not 3x as bad! the needle getting to the joint with the needle was the same, really effing bad. the difference was that there was so much medicine and it was so thick she had to push it slowly into the center of the joint. she got me talking about me losing a lot of weight which is a great way to distract me. i did a lot of deep breathing while i was waiting because there were two giant needles full of something that looked solid.

long story short, all of that went ok. huzzy took me home and i ate a 200mg THC medical marijuana edible. it did exactly what i wanted to happen. i was asleep all day, until the huz woke me up for dinner, but i didn’t eat (unless you call eating another pot snack) and was in and out til bedtime. i slept on the couch for two days because getting upstairs to the bedroom was impossible.and i needed to be able to be near music and tv , art supplies and comic books and medical marijuana thing i could possibly want, down stairs!

i continued with the edibles. the pain was so powerful that i never got remotely high. i took some cannabis oil, a oral dose, and then i smoked a joint. i got through it without screaming or going to the hospital or making my husband want to divorce me! i took more edibles and then some capsules that act like an edible. that’s pretty amazing! the large doses of edibles, etc, kept the pain low enough to avoid the fentenyl and dilaudid i got at the hospital. the last three times scared badly. this time when the pain was at it’s worst i cried out loud and held my husbands hand hard.

i got these shots for years and never had much pain, some, but nothing like
this time. the last 2 times the terrible pain happened again but i had no idea why. later i asked the surgeon and she was very cavalier about it, and said different people had them like i was before the medicine started making me want to die during the recovery period.

before i scheduled these injections, one in each knee, i wanted to find out more, like if i got something nobody else got, or is there a quickfix?
i checked out a couple of arthritis forums. when i looked for “Synvisk side effects” bingo! there were pages of people saying they got my same horrible reactions i did. many of the people who posted said a few days of helll, then no arthris pain for a year.

i think i’m doing pretty well today, because…..!!!!!!

!!!!!!!…….because i got to see Wonder Woman. i’ve been waiting and waiting. it kicked ass! the heroine was fantastic. so were the other actors and actresses. this one was well done enough that it was easy to lose all track of reality. it depends entirely on the director to make this work. they did it right this time. diana is the kind of warrior who cares so much so that ….oops i almost gave something away! better stop there!

i’ve been very into painting with watercolors. i paint a couple times a day and a doodle all the time. i’m wearing gloves to preserve my manicure. vanity!
of a gel medicine that acts as a cushion between the bones where cartilage used to be (it’s gone or part way gone when you have pain).

for this set of injections i decided to use the newish Synvisk One. the reaction to it is too horrible to go through it 3 weeks (it takes quite a while to recover from one) i was so worried the pain would be the with 6ml, the whole dose from the small shots, at once. would it it be 3 worse? would the recover be 3x as badly. i couldn’t imagine that. the shot

the shots were bad, though not 3x as bad! the needle getting to the joint with the needle was the same, really effing bad. the difference was that there was so much medicine and it was so thick she had to push it slowly into the center of the joint. she got me talking about me losing a lot of weight which is a great way to distract me. i did a lot of deep breathing while i was waiting because there were two giant needles full of something that looked solid.

long story short, all of that went ok. huzzy took me home and i ate a 200mg mmj edible. it did exactly what i wanted to happen. i was asleep all day, until the huz woke me up for dinner, but i didn’t eat (unless you call eating another pot snack and was in and out til bedtime. i slept on the couch for two days because getting upstairs to the bedroom was impossible. needed to be able to be near music and tv , art supplies and comic books and medical marijuana thing i could possibly want.

i continued with the edibles. the pain was so powerful that i never got remotely high. i took some cannabis oil, a oral dose, and then i smoked a joint. i got through it without screaming or going to the hospital or making my husband want to divorce me! i took more edibles and then some capsules that act like an edible. that’s pretty amazingz! the large doses of edibles, etc, kept the pain low enough to avoid the fentenyl and dilaudid the hospital. but i really needed it, i was scared.

i got these shots for years and never had much pain, some, but nothing like this, the last 2 times it happened i had no idea why. later i asked the surgeon and she was very cavalier about it, and said different people had them like i was before the medicine started making me want to die during the recovery period. i think i’m doing pretty well today, because…..!!!!!!

!!!!!!!…….because i got to see Wonder Woman. i’ve been waiting and waiting. it kicked ass! the heroine was fantastic. so were the other actors and actresses. this one was well done enough that it was easy to lose all track of reality. that’s one of my personally are movies and tv that are unreal, meant to be unreal, but everything else is realistic. it depends entirely on the director to make this work. they did it right this time. diana is the kind of warrior who cares so much so that ….oops i almost gave something away! better stop there!

blogging, chronic illness, comics, depression, diabetes, disabled, drugs, fibromyalgia, h.r. giger, illness, medicine, Movies, spinal stenosis

update on the state of my mind

i heard an audioslave song, one of my favorites, on a grunge station and i choked up, got tears in my eyes. i keep wondering what chris cornell was thinking during that time between the show, alone in his hotel room, to hanging himself. what pushed him over the edge? all these years i’ve seen interviews with  him and he always seemed so thoughtful and intelligent. i have depression too (i’m bipolar), so i can imagine those feelings pretty clearly. i understand being able to play a show without anyone knowing that you’re feeling like you just can’t make it anymore. (not that i’ve ever played a rock show in front of thousands, but i have had to put an “i’m normal and happy” face when i had to. he had to a lot.  i know you can hide even the worst feelings.  i feel for him so bad. i wish i could have talked to him in that time between the show and his suicide. i don’t know if i could have helped at all, but it seems like if there had been someone there, who got how he felt, it might have gone differently. although, someone who wants to die enough to actually do it, will do it sometime, no matter what you do. i just wish and wish and wish it hadn’t happened. i try to hear it in his voice, when he sings, and i think i might.

i’ve had a lot of pain these past few days. it’s my back i think. that and my knees. the injections in my knees have worn off. you’re usually supposed to get the injections twice a year. you get them in your knee joint (or in this case knees).  you take them in three set sets, both knees each week for three consecutive weeks.

the last time i got them was a year and a half ago. i was having problems with my legs because of my spinal stenosis. at first they thought it was diabetic (yup, got that too) neuropathy, but then decided my symptoms didn’t fit. i was also seeing many doctors on the way to being diagnosed with fibromyalgia. in the middle of all of this, i got two sets of the arthritis injections (the medicine is called Synvisc) and each time my legs became incredibly painful. i figured it was the shots, since it happened each time i got them. i refused the third set (but it still worked for all that time!).  the pain was insane. the second time i ended up screaming and going to the hospital in an ambulance. the EMT gave me iv fentanyl . the pain was still intense, but it made me stop screaming. at the hospital they gave me a couple of shot of dilaudid and that did the trick. they sent me home and the pain went down a lot, but was still feeling too bad to function. it was like that for several days. i don’t know how i got up the stairs but i didn’t go down for 3 days. the staircase was impossible. sitting down on the toilet made me cry out from having to bend my legs.

so! it’s time for synvisc again and i’m fucking terrified. but the knee pain it too bad to live with forever, or even much longer now. i have to try sometime! eep. gasp. panic.

i’m doing something that might be smart, or it might be stupid as hell. i’m getting the one shot synvisc injection. you get all three sets in one injection. it’s 3x as much medicine as i’ve been getting spread over three weeks. the doctor says things like, there will be a great deal of pressure. and the nurse says, the reason not very many people get the synvisc one is because of the pain.

the medicine is thick and the surgeon puts a hypodermic needle that seems like it’s a foot long into the center of your knee joint. it hurts. a lot. but i could deal with it, i’ve been through a lot of pain over the years, so i was ok. but i’m scared about this one. will it be three times worse? i can’t imagine that. the only anesthetic they use is lidocane on the skin where the needle goes in. it doesn’t do shit and it hurts like hell when she puts it on, burning cold. beyond that, and more importantly, than that is the aftermath. will it be 3x worse? i can’t imagine that either.

i decided have the one time shot so that i wouldn’t have to go through the pain afterwards 3x. fear fear fear.  i have a lot of trouble with mental pain, but physical pain is usually something i feel very brave about. but this time is scary.

my tablet died. i finished orange is the new black and it was sooooooo super good. i can’t wait for the upcoming season. my new show is breaking bad. i missed it when it was so popular and i hear so many people say they loved it, i have to watch it. i want to watch better call saul, too, so i thought i’d better watch breaking bad first. i’m reading a superman comic called “secret identity.” it’s a little different than a superman comic we’re all familiar with. it starts with a kid whose parents’ last name was kent. they thought it would be a laugh riot to name him clark.  he’s the laughing stock of the town. but things change. i’ve only read the first couple of issues within the trade paperback. but already he’s developing superpowers that he keeps as a closely guarded secret, hence the title.

i saw Aliens: Covenant yesterday. a lot of the movies at my favorite theater play before noon. all of the movies before noon are half price! so i saw it at 11:30am. it wasn’t very  good. but that’s not to say i didn’t enjoy it. there were some jump out of your seat moments,  and some interesting new additions, but a lot of it was the same thing i’ve seen in all the aliens movies. people see pods and get right over them and look in, well surprise! an alien jumps out and plasters itself to their face. that never happens in an aliens movie! there were running down tunnels or hallways that are sealed and the person running gets locked in with the monster.  that’s an old aliens favorite. it was fun to watch, especially if you’re a die hard aliens fan, like me. one of the things that bothers me the most is that there isn’t any Giger art. i know why, he always battled makers of aliens, maybe ridley scott, or who knows else, used his art for almost nothing and i think they even used things of his after he left the job because they were screwing him over. (this might be quite flawed, but i saw a documentary about giger and that’s what i remember.) i know he was very bitter about it. in this film there were a couple of piles of drawings that you see that look or are giger’s work, but there are vast areas of things like columns with nothing on them when i can imagine them covered with carved giger art.

that’s about it for now, but i think that’s more than enough!

bye!

 

abstract, anxiety, art, black and white, depression, drawing, fibromyalgia, illness, insomnia, mania, mental illness, religion

manic manic manic

i am so wide awake and it’s about 1:30am where i live. i’m out of marijuana. bad news! so i’m hurting more than i should and am more anxious than i should be. this is only the second time since i’ve been a mmj patient that i’ve actually run out entirely. i can get more tomorrow, shwew! i keep turning to the bong and start to pick it up, then realize it’s useless since i don’t have anything to put in it. i’ve been worrying about this for a week. eep!

i have a new painting to post but i thought i took pictures of it this morning, actually i did take them but when i was going to edit them, i realized they were a total fail. there were pictures of my hand, my shoe, the pavement, the door mat, the corner of the painting. doh! i have to wait until there’s some natural light. i used to try to take pictures of art in indoor lighting and the colors just aren’t right. even though i’me excited about this painting, i will wait until it’s fully light to take any pictures.

i have a cut on my toe that hurts like hell. shall we  go into full stream of consciousness!?

van morrison, gloria G L O R I A he’s going to shout it all night long! i’ve got all kinds of  tics and taps. that’s the mania. my shirt isn’t as clean as it could be. no worries though, no one is going to see it. i go to see dr. R tomorrow. i have something to yell at her about, srsly. it stems from  unpleasantness in the household. toe toe toe toe toe it’s easy to type. so is fuck fuck fuck. toe toe toe someone on instagram did an art trade with me and her little framed painting is hanging on the wall in front of me. we talked online pretty frequently i’d call her a friend i guess, or at least i would have, but she disappeared. dammit, why to people do that? stupid of me to say that because i’ve done it many times. still, when other people do it, i don’t like it.

i’m alright. i’m hanging in there, as i always say. the bread we have isn’t the sort of bread you’d want to put fried eggs on. that’s my favorite way to eat fried eggs, balanced on a piece of toast. what we have is cinnamon raisin which is super tasty, but icky with eggs. i mean, maybe the bread would be good as toast on the side, but with the eggs on it, it’s a no-go. toe toe toe

jesus, mary, and joseph i ‘m not tired! that’s a little phrase my dad used to say that my grandfather said and and my great grandfather. the latter two went to church and believed in god. still, they said it. probably because it’s rather catholic and my middle american family was very protestant and viewed catholicism as high church and they were low church. when you ask people what religion they are, they never say protestant or catholic or southern baptist, presbyterian, church of god in christ, on and on. now they just say they’re christians. i just don’t  know about religion. i don’t like organized religion, i know too much about history to ever believe in or condone it. i know that christianity spent a lot of time killing people, or people in it’s name, torturing, ostracism, rules and dogma, kicking out, indoctrination, punishment, misogyny, close mindedness

i didn’t intend to write about that!

here, have an elephant monster. don’t get me wrong, i love elephants. but this one is clearly a monster, don’t you think? white gel pen. tricky thing, that.  maybe i’ll write another post in 30 seconds. who knows?

elephant_monster

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

chronic illness, chronic pain, diagnosis, disabled, drugs, fatigue, fibromyalgia, illness, insulin, spinal stenosis

spinal stenosis, why haven’t i written about this before?

i’ve written about fibromyalgia and diabetes and psoriasis but i’ve never written about spinal stenosis. i’ve never really talked about it to anyone before. it’s a bit hard to explain, or at least it takes a little while and not nearly as many people have heard of it.

spinal stenosis causes me more pain than any of my other ailments. it’s a narrowing of the spinal column, caused by a few different things, it’s arthritis in my case. the problems occur at  L4 and L5. the column narrows enough to cause the discs to bulge and pinch nerves. i also have the same problem at the sacroiliac joints.

i have a very hard time walking, i’ve talked about that a lot. people don’t believe it when i tell them about how long i can stand up and how far i can walk. more about walking in another post. i walk with a cane most of the time. sometimes i wish for a walker or that i could collapse  into a wheel chair. like fibromyalgia, the spinal stenosis has flares.

when it’s bad i have to drag myself around with my cane. trying to go upstairs makes me cry. laying in bed is better than standing or walking, but it’s far from comfortable. there is intense pain in my low back. pain in my hips and butt, weird inside pain in my pelvis. that pelvic pain makes me nauseated. i felt pain like that from endometriosis, too. i should talk about that, too (endometriosis, that is). pain from internal organs is different than any other. awful. nerve pain is also different than any other. then there’s injury pain, like broken bones, and the pain from pain in muscles and ligaments is all it’s own too. ahhh and arthritis pain. argh! and stomach pain. lol, i have it all!

my legs are very weak. i trip and fall too often. it bothers me. i see stairs and i imagine falling down them  and just feel terrified. every once in awhile i wipe out at home and end up on the floor. it’s no fun! standing is very difficult. if i am in the kitchen and i want to use my phone to control my stereo, instead of being able to just stand there and do it, i have to sit down just to do that. i don’t go to stores very often because i can’t trust my legs to survive it without buckling, or getting a stab of pain down my leg or in my back and making a grunty ouch noise, lol, cause sometimes i just can’t help  it! leaning on things like shopping carts helps a little but not nearly enough.

the stenosis is bad enough that my huz has to do 99% of what needs doing to keep things going well in our lives and home and meals and shopping, laundry, etc. my  jobs are to make his lunch before he goes to work and taking the dog out to pee (he takes doggy out to poop 2x a day) 6 or 7 times a day. he’s getting older and i want to make sure he’s comfortable. i have to make sure i take all my meds and my injection and blood sugar, take care of myself (it can be a challenge because of the fibro fatigue.. we hire people to clean.

it didn’t take too terribly long to diagnose this. an MRI shows everything they need to see. it’s cool to be able to look at the MRI pictures with the doctor and have him show me exactly where the problem is and what’s going on.

there are drugs to take to make it easier. in general you don’t take narcotic pain relievers for it because it’s chronic. i take a prescription NSAID, use hot and cold packs, do stretching (i could be a lot better about doing that on a regular basis!) and unfortunately, bed rest.

i have degenerative disc disease, which means things will just get worse.

one day at a time!