blogging, chronic illness, comics, depression, diabetes, disabled, drugs, fibromyalgia, h.r. giger, illness, medicine, Movies, spinal stenosis

update on the state of my mind

i heard an audioslave song, one of my favorites, on a grunge station and i choked up, got tears in my eyes. i keep wondering what chris cornell was thinking during that time between the show, alone in his hotel room, to hanging himself. what pushed him over the edge? all these years i’ve seen interviews with  him and he always seemed so thoughtful and intelligent. i have depression too (i’m bipolar), so i can imagine those feelings pretty clearly. i understand being able to play a show without anyone knowing that you’re feeling like you just can’t make it anymore. (not that i’ve ever played a rock show in front of thousands, but i have had to put an “i’m normal and happy” face when i had to. he had to a lot.  i know you can hide even the worst feelings.  i feel for him so bad. i wish i could have talked to him in that time between the show and his suicide. i don’t know if i could have helped at all, but it seems like if there had been someone there, who got how he felt, it might have gone differently. although, someone who wants to die enough to actually do it, will do it sometime, no matter what you do. i just wish and wish and wish it hadn’t happened. i try to hear it in his voice, when he sings, and i think i might.

i’ve had a lot of pain these past few days. it’s my back i think. that and my knees. the injections in my knees have worn off. you’re usually supposed to get the injections twice a year. you get them in your knee joint (or in this case knees).  you take them in three set sets, both knees each week for three consecutive weeks.

the last time i got them was a year and a half ago. i was having problems with my legs because of my spinal stenosis. at first they thought it was diabetic (yup, got that too) neuropathy, but then decided my symptoms didn’t fit. i was also seeing many doctors on the way to being diagnosed with fibromyalgia. in the middle of all of this, i got two sets of the arthritis injections (the medicine is called Synvisc) and each time my legs became incredibly painful. i figured it was the shots, since it happened each time i got them. i refused the third set (but it still worked for all that time!).  the pain was insane. the second time i ended up screaming and going to the hospital in an ambulance. the EMT gave me iv fentanyl . the pain was still intense, but it made me stop screaming. at the hospital they gave me a couple of shot of dilaudid and that did the trick. they sent me home and the pain went down a lot, but was still feeling too bad to function. it was like that for several days. i don’t know how i got up the stairs but i didn’t go down for 3 days. the staircase was impossible. sitting down on the toilet made me cry out from having to bend my legs.

so! it’s time for synvisc again and i’m fucking terrified. but the knee pain it too bad to live with forever, or even much longer now. i have to try sometime! eep. gasp. panic.

i’m doing something that might be smart, or it might be stupid as hell. i’m getting the one shot synvisc injection. you get all three sets in one injection. it’s 3x as much medicine as i’ve been getting spread over three weeks. the doctor says things like, there will be a great deal of pressure. and the nurse says, the reason not very many people get the synvisc one is because of the pain.

the medicine is thick and the surgeon puts a hypodermic needle that seems like it’s a foot long into the center of your knee joint. it hurts. a lot. but i could deal with it, i’ve been through a lot of pain over the years, so i was ok. but i’m scared about this one. will it be three times worse? i can’t imagine that. the only anesthetic they use is lidocane on the skin where the needle goes in. it doesn’t do shit and it hurts like hell when she puts it on, burning cold. beyond that, and more importantly, than that is the aftermath. will it be 3x worse? i can’t imagine that either.

i decided have the one time shot so that i wouldn’t have to go through the pain afterwards 3x. fear fear fear.  i have a lot of trouble with mental pain, but physical pain is usually something i feel very brave about. but this time is scary.

my tablet died. i finished orange is the new black and it was sooooooo super good. i can’t wait for the upcoming season. my new show is breaking bad. i missed it when it was so popular and i hear so many people say they loved it, i have to watch it. i want to watch better call saul, too, so i thought i’d better watch breaking bad first. i’m reading a superman comic called “secret identity.” it’s a little different than a superman comic we’re all familiar with. it starts with a kid whose parents’ last name was kent. they thought it would be a laugh riot to name him clark.  he’s the laughing stock of the town. but things change. i’ve only read the first couple of issues within the trade paperback. but already he’s developing superpowers that he keeps as a closely guarded secret, hence the title.

i saw Aliens: Covenant yesterday. a lot of the movies at my favorite theater play before noon. all of the movies before noon are half price! so i saw it at 11:30am. it wasn’t very  good. but that’s not to say i didn’t enjoy it. there were some jump out of your seat moments,  and some interesting new additions, but a lot of it was the same thing i’ve seen in all the aliens movies. people see pods and get right over them and look in, well surprise! an alien jumps out and plasters itself to their face. that never happens in an aliens movie! there were running down tunnels or hallways that are sealed and the person running gets locked in with the monster.  that’s an old aliens favorite. it was fun to watch, especially if you’re a die hard aliens fan, like me. one of the things that bothers me the most is that there isn’t any Giger art. i know why, he always battled makers of aliens, maybe ridley scott, or who knows else, used his art for almost nothing and i think they even used things of his after he left the job because they were screwing him over. (this might be quite flawed, but i saw a documentary about giger and that’s what i remember.) i know he was very bitter about it. in this film there were a couple of piles of drawings that you see that look or are giger’s work, but there are vast areas of things like columns with nothing on them when i can imagine them covered with carved giger art.

that’s about it for now, but i think that’s more than enough!

bye!

 

art, bipolar, blogging, chronic illness, comics, depression, Life, texture

My week.

I was very depressed yesterday because of Chris Cornell’s death. I still can’t listen to Soundgarden or Audioslave, I’m afraid it would upset me more than i”‘m willing to go through right now.

My own depression is bad, my pain is difficult and I have something new to be afraid of. It”s a procedure that is going to be very painful.

I’ve been reading comic books like crazy! I found trade paperbacks aka graphic novels, aka comic books that are collections of quite a few single issues collected in one volume used which are half off the price listed on the book. Comic books are really expensive, so it”s a great find. They have a good selection of older Batman books.

I can”t wait for the Wonder Woman movie to come out and The Defenders on Netflix!
I enjoyed seeing whatever that King Arthur movie is called. I enjoyed it because Charlie Hunnam was the star. I have a big crush on him, from watching 7 seasons of Sons of Anarchy. The plot was all over the place, i didn’t relate or sympathize with any one, there was no character development, and even though it was fantasy, it still seemed like it was wildly unbelievable (not in a good way!).

I am trying to ignore what’s going on in my country. I live in a little bubble . Trump is ruining everything. Photos of him make me sick. So I tune it all out. I like to stay up late and close up everything…all the curtains and blinds. paranoid, maybe. Great need for privacy.

My neighbor complained about my dog’s barking. I don’t blame him, it’s a pain in the ass! I have to figure out how to shut the dog up!

I painted yesterday and today. It felt good,

I hope you have a creative weekend!

anxiety, chronic illness, dessert, disabled, fibromyalgia, Japanese food, Movies

going alone

lately i’ve been having fun going to the movies alone. in the past i would have never done that. i would have expected it to make me really anxious. i buy a reserved seat on the aisle (i have to be on the aisle…so i can make a quick get away! lol). it’s a long way to the theaters from the front of the movie plex. i launched myself along to the theater. sometimes i went with the boot on, for my Achilles tendinitis and then i could really move. who would have guessed? 🙂

i like going alone because if the movie is bugging me i can wander around and get a refill on my giant soda, or primp and preen in the bathroom. if i really hate it, i can get up and leave! i don’t do that too often, but i have a few times and it’s fab not to worry about what somebody else wants! the seats at the theater (there’s only one i will go to…it’s close, i know my way around there and there is lots of handicapped parking!) best of all are the seats. they’re like nice recliners, more comfy than my furniture at home. the seats go back and a foot rest comes up. there are cup holders for your giant soda.

today i went out to lunch alone. that was fun too. i had red bean mochi for dessert and my husband wasn’t there to look disapprovingly at me. lol i can take as long as i want and i can look at my phone the whole time, if i feel like it. i don’t have to make conversation, which is sometimes awesome, but today i just didn’t feel like talking. i got there just before the lunch rush, so i got a booth all to myself. i had ramen (real japanese ramen, not the abomination in the plastic wrapper.) they make it with five different broths, you choose one. my favorites are shoyu ramen and miso ramen. it comes with a big piece of pork and a runny egg. i ask them not to give me those. ugh. there are still green onions, weird but tasty mushrooms, fresh corn, lots of noodles and broth. the broth is so go i eat most of that before i even start on the noodles, which are usually my main reason for ordering dishes like this. it was expensive, but entirely worth it. i’m a regular there now! the sushi chef plays bob marley allll the time. i’ve never been in there when he wasn’t playing it. i love that!

i always go to coffee on my own because my huz hates starbucks and only drinks the espresso he makes. i’m not so snooty. right after i get up and get dressed (sometimes i wear my pjs, it’s early) i go to 7-11 and get hazelnut coffee. if they don’t have it brewed, or if it’s been sitting in the container too long, they make me a fresh pot when i ask. i’m really, really a regular there.

there are so many bums around  there, men and women. i’m going to go bankrupt with all the money i give them. i probably shouldn’t, i mean, i don’t especially want those people around, even more so when i first  get up, but my heart goes out to them. i was talking this guy and he told me it had been months since he got to sleep laying down. i imagined that and was horrified. he walks with a cane, too, so i really feel his pain.

everybody is looking for bus fare. ha! they should build a bus stop and right next door, the the cigarette and liquor store, with weed dealers outside next to that. lol. they could have a sign…homeless people with a lot of change welcome here. hahahahah

so, try going places alone, you can make your own choices, independently, doing just what you want! it’s freeing and once you get over feeling weird about it, you’ll really like it, but i don’t thing many people would want to go *everywhere* alone. i sure wouldn’t. but it’s fun when your looking for freedom.

chronic illness folks, you can take as much time as you need to with out worrying about someone else wanting to go faster. you can stop and rest, you can decide it’s too much and just go home. having a handicapped placard makes it soooo much easier! i know some of you just can’t go and i’m sorry about that. i hope this post doesn’t make you feel bad!

have an awesome wednesday!!! ❤

 

anxiety, bipolar, chronic illness, comics, fatigue, fibromyalgia

the lie or the cold shoulder

today when i went to get my coffee the clerk asked how my day was going. i couldn’t help but answer with the truth i told him i was really really tired. he asked why and i told him, i have this disease and it makes me tired. how long have you been sick? it was clear he thought it was a cold or flu. i was embarrassed that i said it to a total stranger.  i just mumbled that i had a disease that was forever. there! i said it in public, even if i did mutter it!

it’s so hard to deal with situations like this. one option would have been to just say, oh i’m fine, thanks. that’s what i say when i’m nervous, or i’m actually doing really badly. i hate it. why does everyone have to ask. sometimes if it’s an internet person that i only know a little i say, do you want to know the truth or do you just want to hear i’m fine? i suppose that’s kind of rude, but that’s exactly how i feel. if you must ask how i am, be prepared for a lot of complaining or the cold shoulder.

sometimes i wish i didn’t have an invisible illness, that i had something you could see, or at least something people know about, but who knows anything about fibromyalgia? spinal stenosis is even worse. even fewer  people know what the hell that is. it’s not as invisible as fibro. i limp and walk with a cane. but the pain in my back and those awful flu-like symptoms of fibromyalgia don’t show, not does the awful nerve pain in my legs, not to mention the arthritis in my knees which doesn’t really affect my walking, it just hurts a lot.

i really wanted to explain fatigue to the guy i bought coffee from. of course he’d never get it, and in truth, i’d never actually say it, but it’s tempting. fatigue motherfucker, try it sometime! sometimes when i’m getting into to bed, for a nap,  or for the night, i have to sort out the covers, arrange the dog. get myself comfortable, etc. part way through all that, i’m hit with a flare of fatigue. i just fall back on the bed, none of those things done, i was just overwhelmed by frightening tiredness. sometimes i want to cry when i feel like that, but i’m too fatigued to even do that. i just laying bed for a little while and slip into sleep very easily.

i want to look fuss with my tablet and maybe even watch some Arrow, but my arms hurt too badly to hold it up. i have to sit at a table to do it. sitting up at a table or desk is hardly  comfortable with my ouchy back and hips.

i’m almost desperate to communicate. my sweet  husband is a very quiet introvert, he really doesn’t like hearing about things like my chatter when i’m nervous, or manic like right now. he’s not like my best friend; we don’t sit around and discuss problems or advice or support. his favorite thing right now is Planet Money podcasts. i shouldn’t complain, but sometimes i wish for a warmer, fuzzier partner.

i read the the first volume of Wonder Woman in the rebirth series (DC). it was really good. in terms of the art, most of it was great, showing her as the Amazon she is, tall, ready to fight at anytime. her costume is a little more stable, lol, it doesn’t look like her boobs are about to fall out at any moment and you wonder, how can she fight with a metal bustier on? she has a regular human lover! she’s been with Superman in the past, but this is intriguing and new.  the thing that i liked in every drawing of her was her hair. they (there are different issues by different artists contained in the volume i was reading.) all drew her with gorgeous flying and floating and curling hair in a great wavy, black and massive mane. i wish my hair looked like that! 🙂

abstract, anxiety, art, batman, bipolar, chronic illness, chronic pain, comics, depression, dog, drawing, drugs, fibromyalgia, insomnia, mania, medical marijuana, mental illness, oakland california

still manic, still manic, still manic

i spent my day feeling too jumped up, a lot like being on meth. yes, i know a lot about being on meth. oh boy, i’ve never said that in public before. so yeah, i wish manic was like being on coke, but unfortunately it’s like being on meth.

i ate a big dinner which i am regretting because i haven’t been eating much so i feel bloated and gross. sometimes being really hungry for a couple of days makes me feel so clean inside. no, i’m not anorexic. my moods just throw me around a lot, and i’ve got that and all the meds i take and the fibromyalgia and spinal stenosis, and a nasty childhood all contribute to making me do, and feel, and act a little strange…a lot strange…  i do things that don’t make sense some of the time. i got hooked on meth because i was so depressed and it made me feel so much better, that i kept using it. untold energy, no appetite, no need for sleep, elevated mood, euphoria. sounds like being manic, too.  ahhh and delusions of grandeur, i hope i don’t get those, but maybe i’m not bill gates.LOL

i went to the comic book store today. alex the comic book guy was there, of course he was there, it’s his shop. hehehe actually, the only day i’m sure he is working in the shop is tuesdays, so i go about every other tuesday. he’s a cutie, deep, and really smart. not to mention he’s an incredible authority on comics! i bought two issues of batman all star, the rebirth reboot. i got an issue of jessica jones, but i really didn’t like the way it looked. bummer. i still don’t have money, so that’s all i got. i went to starbucks and only got an iced tea, but a cake pop was calling my name. but i averted my eyes and asked for no sweetener in my passion tea.

it was a gorgeous spring day, first one we’ve had this year. i actually drove around with the windows down in my car. a rare thing. i like to listen to music in the car, not wind noise. i am 100% out of mmj. i scraped up every bit, i used the kief in the bottom of the grinder. i am DRY. i hope it’s nice tomorrow because i’ll be driving up to Oakland to go to my dispensary. i call it “my dispensary” as though i owned it. it’s just mine cause it’s the one i’ve chosen to give all my business to.

i saw my psychiatrist today and she thought i might be manic partly because over the last couple days it got to be full blown and that when i had little or no marijuana. we adjusted the meds to, not take ritalin (that’s a no brainer), and to take less wellbutrin because it’s activating.

i saw a woman come home and greet her dog, who had been home alone all day, and they were both so happy to see each other. that’s the kind of thing that really makes me feel good.

Ant_Hills_by_merpagigglesnort

 

 

 

 

 

 

 

abstract, anxiety, art, bipolar, black and white, chronic illness, chronic pain, depression, drawing, fibromyalgia, glasses, mania, medical marijuana, mental illness, optometrist, pen and ink

bipolar and fibromyalgia are kicking my ass

i’m feeling glum today. down, blue, bummed, out of sorts.  i want to write and i get up and down from my desk and start to write and delete it.

so this is bipolar. i’m manic; but right this moment i’m feeling depressed. i’ll get back to feeling manic again. i spent all my money on a LOT of stuff, i just bought anything i wanted. ugh. now i’m left with a whole lot of things, a  zillion of them and no money for anything else. typical mania. i’m hardly sleeping. i ate a huge dinner last night when of my husband’s friend came over, she’s Chinese, so she cooked real Chinese food for us. it was wonderful. but other than that, i’m not eating much.

being manic is a lot better than depressed, in my opinion. if mania lasts too long it can lead to big problems. i’ve been manic for about three weeks, it’s very low grade but can flare up or fall back into depression easily.  it’s good for weight loss! mmj helps a lot, kind of evens me out, gently. it lifts my mood and dampens my constant pain. yay cannabis!

my new glasses are coming today! i’m so excited about being able to see at last. for the longest time eye doctors kept telling me that my prescription hadn’t changed, but i knew it had. finally it’s gotten so bad that the doctor was shocked there was such difference. duh! so hopefully these new glasses will be like new eyes! maybe i’ll be able to drive at night again. that would be really nice.

i am so incredibly cold. i’ve have gotten so much colder since i got fibromyalgia. right now i hurt because i’m cold. putting on lots of extra clothes doesn’t really cut it. it’s from the inside out. i want gloves. spring can be as cold as winter here i want to go get coffee, but i can’t get myself to leave the house. 😦 that’s a product of both bipolar and chronic illness. imagine never ever feeling safe, not safe in your body and not safe in the outside world. maybe it’s anxiety, which seems to go along with bipolar or depression, or on it’s own.

maybe it’s agoraphobia, i suffered from that for a few years. it got to the point that i could only be in one room of the house, the computer/art room. i stayed there all the time, except for sleeping, at night i could go to the bedroom. we even ate our meals in there. my husband was so kind and thoughtful. he takes everything in stride. we’ve had hard times, what  marriages don’t? but he’s a good one, no doubt about it!

compartmentalise

anxiety, chronic illness, chronic pain, depression, disabled, dogs, fatigue, fibromyalgia, medical marijuana, Movies, stress relief

taking a hard fall

the huz and i went to Beauty and the Beast. it was all about dresses and dancing. it was visually fantastic, but that’s about all it did for me.

as i was coming in the house i tripped on the first  step into the living room i tripped and feel on my face. the mega huge soda that i refilled when we leaving the theater and went flying all over the room. i hit the floor with my hip and hand. now i have a sore wrist, a really sore hip, and a sticky floor. the floor is wood, which made the fall delightfully hard. grrr! gahhh! hopefully it was no more than some soreness. i fear this might bring on a flare (just like any kind flare up is like other kinds of flare ups, but in this case, the flare is increased pain) of my fibromyalgia symptoms.

i may spend the evening in bed or maybe one of my prescription NSAIDs. they help quite a bit. ice packs and heating pads will feel good and my pjs and of course, Mackie.

remember those adidas sandals i was stoked about?  i left them together and after the cleaners  came, there was only one. i hardly think they stole it. what would they do with it? lol i trust them anyway. i have looked and looked looked for it and can’t find it. sometimes they put things in odd places that i’d never think to look in or take it away with all their bags of stuff. now what, right? i suppose buy them again, but it just makes me want to scream. the huz will look. he’s good at finding things.

i guess i’ll just smoke a lot of medicine. of course that makes me worry about running out because i  think i really am going to. that’s only happened once before.

so the day sucked. the evening hasn’t happened yet, it might get better.