diagnosis, disabled, illness, Uncategorized, writing

journey to a diagnosis, part 1

two years ago i started a journey that i’m still on. it began with a pain my  left hip. i went to my GP and she said the problem was bursitis and that my  orthopedic surgeon. should give me a cortisone shot. when i when i went the surgeon she said it wasn’t bursitis and so she wouldn’t give me the shot. i was starting to get frustrated because as it went on, the pain in my leg (it was starting to spread)  was really getting to be a problem in moving around.i started wearing compression bandages on anything that hurt. i still do that. i also wear ankle braces and compression socks. i wear compression gloves for the pain in my hands.

my hands hurt because i had four surgeries on them, some a bit unusual, for i had trigger finger in all ten fingers. highly unusual. the doctor said it was genetic (my father had it in one finger as did his brother and one of his sisters. the other reason is because i’m diabetic. the surgeries were years ago but my hands will never be the same. they swell regulary and hurt like hell. i think the surgeon was  too quick to to do the huge surgeries. but whatcha gonna do? i put ice on them all the time.g

the orthopedic surgeon sent me back to my GP who then said it was sciatica. i almost cried. she then sent me to a pain doctor. i was glad because i thought i knew what it was. was.the GP sent me to a  pain doctor. he told me to have an  MRI to see if anything is going on with my spine. he found that i have spinal stenosis. L4 and L5 were pinching the nerves, which caused the pain in my leg and my low back . my pelvis and hips hurt deep inside. they found that i had arthritis in my pelvis as we in several  parts of my spine, not to mention the severe arthritis that i have in my knees. the knees get synvisk injections 2 times a year. they help a lot.

the pain doctor prescribed medicine that would help. the pain was spreading to my whole body.he gave me a big dose of gabbapentin, cymbalta, a strong NSAID called Sulindac and norco. they helped a lot,  but not nearly enough. he decided a procedure would help. i had an epidural steroid injection in  L5.

the clinic i go to for all my doctor, built a surgery center right next to the clinic. my procedure was only a couple of months after they’d opened. it was lovely! they put me in a room for prepping me for the procedure. the nurses were so nice. there  were three of them fussing over me. it actually  was really nice. i felt well taken care of. after kind of a  long wait they wheeled me into the operating room. i layed on my stomach on the operating table. it was a conscious sedation but you could have fooled me because i was close to being unconscious. they were giving me iv versed and fentanyl. that part  was  great! lol i could feel the doctor giving me little local anesthetic around the area he was going to go in with the needle. i didn’t feel much of anything other than my legs my legs went kind of numb and jumpy. when he finished i was taken to post op where i was given after care   instructions and got dressed. it didn’t help at all.

i’ll going to stop here because it’s a very long story. i meant for these sections of the story into approximately 500 words. i went over quite a bit this time!

stay tuned for the second installment!!

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